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6
24th September 08:08
External User
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Chickened Out
Hi Max,
I'd like to start the post by "Declaring my interest". I am one of the
co-founders of this newsgroup and the webmaster of the group website
http://www.vasectomy-information.com.
Long story shortened - the newsgroup was started after I met one of
the
other founders on some techie newsgroup. He was asking about vasectomy
there
as the group was mainly men, and he figured that there would be
someone in
the group who had undergone vasectomy and would talk to him. We
eventually
got round to asking the question "Why isn't there a vasectomy group in
Usenet" and (with others) set about creating this group.
The other guy was the first webmaster of the group site, and I sort of
inherited it at a later date. My financial interest is a negative one
- the
site costs me approx £10 per month to host. In addition if I use
applets or
services from third parties there is additional cost involved. It all
comes
out of my "Beer budget".
I'm English, but I try to make the site as multi-national as possible.
We do
get a *lot* of visitors from places other than UK/US including many
countries where English is not the primary language. What I try to
promote
is "Informed choice" - that includes going deeper into studies and
articles
than many people do, and providing commentary/information on how
statistics
are made up. I believe it's essential for people to know the
background
behind any specific quote or claim if it's going to be used in
decision
making.
We probably agree on more than you think. Thanks for clarifying the
story re
not being pressurised and your wife agreeing once she read the info.
that
I was making a generalisation with the comment. Many of the negative
stories
I have read (and that is a lot) *do* have lack of research and
pressure as
the main
theme. Probably more so than ones who complain of specific medical
conditions. A lot of the positive stories also feature balls as big as
g****fruits, and graphic descriptions of post-op infections. Generally
in
that male boastful style of course. One of our regular posters here
once
made the remark that all stories (both positive and negative) contain
some
measure of over-egging.
I'm not trying to alter your opinion!!!
same
There are a lot of men who didn't do any research until afterwards and
wished they had. These men certainly did not see these materials. My
point
relates to those men who have done their research prior to vasectomy.
As
webmaster of the group site, I have a fair amount of experience in how
people find the site, and what they look for once there. I'd say that
some
98% of site visitors find the site by the simple search term
"vasectomy",
and when they get there they are much more likely to look for
information on
complications that anything else. I know this from the search terms of
the
onsite search engine, the pages they look at, and the off-site links
they
follow.
In the top ten pages this month are the medical journal extracts page,
reversal stories, "Dutch study", long-term pvp stories. The negative\0
stories
always top the positive stories in hits and post-vasectomy pain.com is
the
third most popular link.
All of this suggests that men are doing research into complications,
yet the
feedback on various aspects of the site is that men are glad to have
found
all this information in one place, and reading it mostly helps confirm
their
decision to go ahead. Some people are put off vasectomy having read
the
materials.
Absolutely. This is why I'm in favour of any move to standardise
counselling. Every man thinking of undergoing the procedure *should*
be
given the information by the doctor. Some are better at it than others
it's
fair to say. This is one of the purposes of the group - to fill in
information gaps.
and
cauterize
when
Well, it could be argued that it's "Full" in the sense that they are
telling
you all they actually know. However, as that is specifically bugger
all then
it doesn't help. I think the text is a direct lift from vasclip's
website
They can make that statement on the basis of the trial results. I'd
point
out that the trial was a) paid for by the manufacturers of the device,
b)
small sample, c) short term and d) no independent research seems to be
available.
I recently bought a scanner. I didn't even bother reading the
manufacturers
blurb - I skipped straight to user reviews. Similarly, I'd not
undergo a
procedure based on the manufacturers or promoters blurb either.
I thought you were about to say that the hunter shot the hiker!!! I
agree
that whilst being accurate it isn't helpful as to the specific risks,
and I
point people to places that discuss the risks as opposed to sites that
merely come up with that type of statement.
do***ent
This statement comes from the following study (available on the group
website medical journals extract page)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=1537032&dopt=Abstract
In a study to assess the incidence of chronic testicular pain
following
vasectomy, it says that "Chronic testicular discomfort was present in
33%
of patients". OK - but the study raises more questions than it
answers.
The sample size was 172. They didn't say if this was the number of
questionnaires they sent out, or the number that responded.
Questionnaires
are
quite a common research tool, but it's usual to state the number
polled, and
the number of respondents.
So how is the 33% made up? A total of 56 patients, 30 of which did not
describe the condition as "Troublesome". 9 patients sought medical
help,
and 2 patients required further surgery.
How can you have a "serious and debilitating condition" where 53.6% of
those
who have it say it's "Not troublesome"?
Why did only 5.2% of the total sample size seek further medical
assistance?
Is the fact that only 1.16% of the total sample size needed further
surgery
significant?
Bottom line is that people are making the claim that 33% *is* the
incidence
of PVP based on some 56 men, where 30 of them didn't find it
"Troublesome".
You would expect that nearly all the men who had pvp regretted having
a
vasectomy, however that is not the case. The study says that "Only 3
patients regretted having had the vasectomy because of chronic pain.".
That
represents 5.3% of the 56 men.
Absolutely. Some do, some don't. However, the information on doctors
websites often concentrates on practice location, services offered,
contact
details etc. Some are better than others - one UK site we link to even
publishes a practice audit listing percentages of specific
complications and
number of phone calls/re-consults after the vasectomy.
There is no code of practice for websites, and to be realistic there
probably never will be. There are various voluntary schemes to ensure
that
the information on a site is balanced and accurate such as the HON
scheme
http://www.hon.ch that the group site is an accredited member of. However, as
many
sites are not offering information there is no real need for them to
subscribe to such a scheme I'd say that whilst the guidelines doctors
work
under re counselling are in their current state the internet is the
best way
men have of finding information.
It may be the opinion of doctors that the consultation is the proper
place
to discuss information, hence they don't put a great deal on the
website.
I'd suggest appraising oneself with information on the web, and
writing out
a list of questions for the consultation of points you need answers
to. If
the doctor is a good one he'll be able to answer them fully and
honestly.
Many doctors do actually want patients to do research and have some
understanding prior to the consultation. It is beneficial to them to
have a
patient well versed, and able to understand issues discussed.
One way of viewing this is that to find any doctor's website on the
internet
you *will* have stumbled across many other sites in the process - some
of
them doctors sites, and some of them information sites. In this case,
it's
likely you would have dipped into some other sites you found on your
search.
I would certainly not go to the doctor these days to discuss any
procedure
without having looked up general information on the internet. I would
suggest that I'm not alone here. Last month 14,848 people found the
group
website. That is the main index page, and does not include various
pages
they came to the site on. I have no data on other sites of course, but
it
does rather imply that people *do* look up the procedure on the
internet
before booking consultations.
Maybe a word of explanation here. The UK guidelines were available on
the
RCOG site as a public discussion do***ent. As a member of the public,
I most
certainly had my say. The discussion do***ent has passed the public
consultation stage, so is not currently on the site. The existing
guidelines
are though. The do***ent was freely available, and as a UK citizen I
have an
interest in what happens here.
I found what I *think MAY* be the US equivalent on Medline. The
do***ent it
apparently replaces has virtually no information on vasectomy, so *if*
it's
the do***ent I think it may be, then I have my doubts if the update
will be
any more informative. I am not willing to pay to see the do***ent
primarily
because I'm particularly short of cash at the moment, and in any case
I'm
not a US citizen. If I was sure it was the US equivalent then I would
be
willing to splash the cash, but I'm not sure it is. Besides, at some
point
it will be summarised on the net, or be available publicly.
The UK guidelines discussion do***ent is available at
http://www.vasectomy-information.com/pages/rcogdraft.pdf It's a 1.5Mb
download.
Absolutely - it's a lifestyle issue for all surely? However, it's
still a
medical procedure.
Is there a "zero risk"? In my case, I decided to have a vasectomy
during the
time my wife was pregnant with our son. We had decided that the family
would
be complete, and I decided that vasectomy was the answer. We had had
condoms
split, my wife had actually got pregnant whilst on the "mini-pill". In
our
case, vasectomy was the least risk scenario - all procedures and
options
considered. The decision was not taken "Jointly" - I made the decision
and
informed my wife what was going to happen.
I don't agree that it's a strong word. There are organisations and
individuals (religious and political) opposed to vasectomy, and the
common
technique used is always scare tactics. Lots of banner headlines, but
little
or no actual evidence backing claims. Often what you do read is
seriously
misrepresented. I would point to the "Dutch study" here as one such
example
(there are others). It's oft-quoted as research into PVP on Dutch men
when
it's nothing of the sort. It's a small study done in Michican that
had a
some of
the findings of this small US study onto the entire male population of
the
Netherlands. It's now passed into folklore as "Fact". It's my opinion
that
men have the right to know what is behind banner headlines.
The oft-heard argument is that doctors make money from vasectomy and
that's
their only motivation. The cost in the US varies from $250 to $1000.
I'd
suggest that they don't make that much profit after a consultation,
the
procedure and aftercare, staffing costs and overheads. Especially at
the low
end of the scale. Urologists often receive set fees from insurance
companies. Urologists are expected to offer vasectomy as one of the
services
they perform, but there are probably much more lucrative area's of
their
practice. Some doctors concentrate solely on vasectomy, and unless
they
really process lots of them I'd doubt if it would be particularly
lucrative.
Do they have patients interests at heart? I may have a particularly
cosy
vision on this, but I'd say yes. The guy who did my vasectomy was my
GP.
He's attended various childhood illnesses of the kids, and been called
out
to my wife in the middle of the night during pregnancy - he definitely
had
patients interests at heart. As for the others, well, I don't
subscribe to a
mental picture of some demon guy dragging people off the street to
chop
their 'nads for cash with no concern for their well-being. I think
you'd be
hard put to find anyone meting that description! They clearly need to
make a living, but that does not mean they are all quacks and
charlatans.
"Admission of possible complications" + "lawyer feeding frenzy". I
believe
you specifically refer to PVP here, as opposed to the possible
complications
such as bruising, haematoma, infection etc etc. In the UK, most legal
cases
re vasectomy seem to have concentrated on the pre-vasectomy
counselling. If
you can prove that the doctor did not mention a know risk then you may
have
grounds for action. I think the same applies in the US. They pretty
much
have to mention possible failure and the usual post op complications
to
cover their arses. Other than that, the picture is murky as to what
they
should or shouldn't say.
For example, should they discuss conditions that have been looked into
as
being associated with vasectomy but subsequently dis-proved?
Personally, I
think that written information should be made available that includes
this
type of research, and the UK guidelines fully discusses these issues.
Should they warn about PVP? Most research over the years has concluded
that
they should, and that is what I believe should happen. The reason I
fully
support the UK guidelines is that they make this mandatory.
The picture in the UK is different to the US, despite broadly similar
percentage take-up of vasectomy. In the UK the National Health Service
provides most vasectomies at no cost to the patient, and the doctor
does
them as part of the services of the practice for the set salary he
gets from
the NHS. The motive in the UK is therefore not a financial one, and in
the
UK vasectomy isn't "sold". If you want to have it done, you need to approach the doctor.
I'm not sure what questions are "Unanswered". I agree that doctors
should be
scrutinised. The group website has links to places where you can check
on
the doctors qualification and licensing in both the UK and US (and a
couple
of other countries). In addition, we have always said that asking the
doctor
how long he has been doing the procedure, how often he does the
procedure
currently and his personal record on complications (and how he would
treat
them) are perfectly legitimate questions to ask.
As above, I do not have a financial interest.
I'd disagree here. The first published study was 1830 BTW. Anyway,
there is
no shortage of information available. The group website has quite a
few
articles and extracts from journals, and that's just the tip of the
iceberg.
There are also some do***ents that discuss the studies done in the
past.
There is well connected from Harvard Medical school
http://www.vasectomy-information.com/pages/wellconn.pdf that discusses
the
evidence (physical and physiological) in detail,
http://www.vasectomy-information.com/links/docguidecom.pdf that summarises
some 139
studies, and the RCOG discussion do***ent above amongst others.
I think we both agree that more information should be given than often is currently.
I know that is a technical definition of the word majority, however I
would
use the term in the context of "Substantial majority". The 49/51%
argument I
would class as not a substantial majority, and regard it as being
"roughly
equal".
Regards,
David
http://www.vasectomy-information.com
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