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1 21st January 02:38
deneb
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Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart stress down stent angiogram)


Hi,
Sorry, I pressed a button and zip....away went the e-mail where someone, a male I believe, asked how the docs could tell I had a heart valve problem. The PCP that referred me to the cardiologist worked in the same building and they shared info on patients a certain day of the week. This PCP knew about CFS, as he had worked with Peterson in Incline Village at one time.

Anyway,they ordered a complete workup when I failed the stress test on the treadmill. So then, an EKG was done for the first time since I've been ill (about time), then the cardiologist looked at all the results and really listened to my heart after the treadmill. Before the treadmill, he said, sounds good. After the treadmill, he said (isn't this professional?)" one of your valves is not pumping good and your heart sounds squishy" SQUISHY???

So then an angiogram was ordered for the next morning. Little did I know what that involved. No real pain, but I didn't know they made an opening on your inner top thigh to hit the femoral vein to run the ****y camera on a wire through. He was astounded when he found my arteries were clean as could be. He just said, "well, I guess that's it" and I haven't seen him again. Typical. If my arteries had been clogged, they would have gone ahead and done angioplasty where they open the clogged artery with a balloon or stent.

What I wanted to tell him was that the upper left valve problem is common in CFS patients, but then I'd had to explain what CFS and the heart have in common. So, one of these days I'll see a different cardiologist who might have a better idea...like physical therapy or oxygen or anything which might help my weakened heart.

So if you have a heart workup or respiratory workup, have them do it AFTER the stress test, in which they also measure your BP, heart rate, and oxygen levels. That is when they will find abnormalities, not before when you've just been sitting down. I hope this helps.

SUZQ in Sin City
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2 21st January 02:38
tony23
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Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart echocardiogram)


Hi Susan
Thanks for the info. I can't understand how your doctor can diagnose heart valve problems from listening to your heart. I had thought they used an echocardiogram. I show some problems on a resting ekg, I'd never take a treadmill test. Too risky IMHO.
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3 21st January 02:38
deneb
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Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart echocardiogram)


Tony,
Well, I could be wrong about the EKG .. but I thought that's what an
echocardiogram was?? If not, then I just have my tests and memories mixed
up...what else is new?? : > That's interesting about your resting EKG. Dr.
Peterson first put me on a treadmill, but as I said, someone was holding me
on...and he would stop it before a regular PCP would. He knew what we could
take, I guess. Also, my early one was fairly early in my disease and I think
my heart was better then. I just came up short on Oxygen and my CO2 levels
were bad. Do you know about Dr. Lerner in Michigan?? I think, somewhere up
there at a Univ.Medical School. I was going to go to him for his opinion,
as he is of the theory that it is our problem with our heart valves that
causes the disease in the first place. I don't know if I agree, but with the
low to med. heart pain I have at different times, if I could get the money
to go to him, I would.
Sorry I had forgotten your handle. Memory problems, can you imagine?? SUZQ
;~/
----- Original Message -----
From: "TonytheTiger" <tony23@efn.org>
Newsgroups: alt.med.cfs
To: <CFS-L@MAELSTROM.STJOHNS.EDU>
Sent: Tuesday, August 12, 2003 11:44 PM
Subject: Re: Lost the e-mail re: kind of test for heart valve prob.


Hi Susan
Thanks for the info. I can't understand how your doctor can diagnose heart
valve problems from listening to your heart. I had thought they used an
echocardiogram. I show some problems on a resting ekg, I'd never take a
treadmill test. Too risky IMHO.
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4 21st January 02:38
tony23
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Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart depression echocardiogram coronary)


Hi Susan
An ekg is a test where they put little sticky electrodes on your chest to measure the electrical activity of your heart. They can tell if your heart has normal electrical transmission, also they can tell from ST segment depression if your coronary arteries are blocked. But the test has some false positives as it did in your case. An echocardiogram uses sound waves to view how the heart is beating. I don't know nearly as much about echoes as I do ekgs. IHMO pwc's have somewhat damaged hearts as does Dr. Cheney, but it is difficult to measure the extent of damage and even more difficult to repair it. I've been ill since 88.
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5 21st January 02:38
dawnsroses
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Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart stress down stent angiogram)


Hi.

Does the valve defect have anything to do with "Borderline first degree AV block" or "left atrial enlargement" by chance? If anyone knows the answer, please let me know as I noticed this on an old EKG done in 2001 but have no idea as to what it means.

Thanks! :-)

Tammi

Sorry, I pressed a button and zip....away went the e-mail where someone, a male I believe, asked how the docs could tell I had a heart valve problem. The PCP that referred me to the cardiologist worked in the same building and they shared info on patients a certain day of the week. This PCP knew about CFS, as he had worked with Peterson in Incline Village at one time.

Anyway,they ordered a complete workup when I failed the stress test on the treadmill. So then, an EKG was done for the first time since I've been ill (about time), then the cardiologist looked at all the results and really listened to my heart after the treadmill. Before the treadmill, he said, sounds good. After the treadmill, he said (isn't this professional?)" one of your valves is not pumping good and your heart sounds squishy" SQUISHY???

So then an angiogram was ordered for the next morning. Little did I know what that involved. No real pain, but I didn't know they made an opening on your inner top thigh to hit the femoral vein to run the ****y camera on a wire through. He was astounded when he found my arteries were clean as could be. He just said, "well, I guess that's it" and I haven't seen him again. Typical. If my arteries had been clogged, they would have gone ahead and done angioplasty where they open the clogged artery with a balloon or stent.

What I wanted to tell him was that the upper left valve problem is common in CFS patients, but then I'd had to explain what CFS and the heart have in common. So, one of these days I'll see a different cardiologist who might have a better idea...like physical therapy or oxygen or anything which might help my weakened heart.

So if you have a heart workup or respiratory workup, have them do it AFTER the stress test, in which they also measure your BP, heart rate, and oxygen levels. That is when they will find abnormalities, not before when you've just been sitting down. I hope this helps.

SUZQ in Sin City


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6 28th January 19:43
deneb
External User
 
Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart stress down virus stent)


Tammi,
I don't know. I will try to research this and look at my records to see what
they called my valve not pumping correctly. I can't answer that question
now. Dr. Martin Lerner is the cardiologist that thinks he has the link and
possible cure as he (debatably) thinks the heart valve and weakening heart
by virus is the real root of the problem. I'll send you a URL so you can see
what he is about. He'd know for sure. SUZQ : )
----- Original Message -----
From: "Tammi Cantrell" <dawnsroses@yahoo.com>
Newsgroups: alt.med.cfs
To: <CFS-L@MAELSTROM.STJOHNS.EDU>
Sent: Wednesday, August 13, 2003 10:46 PM
Subject: Re: Lost the e-mail re: kind of test for heart valve prob.

block" or "left atrial enlargement" by chance? If anyone knows the answer,
please let me know as I noticed this on an old EKG done in 2001 but have no
idea as to what it means.


male I believe, asked how the docs could tell I had a heart valve problem.
The PCP that referred me to the cardiologist worked in the same building and
they shared info on patients a certain day of the week. This PCP knew about
CFS, as he had worked with Peterson in Incline Village at one time.


treadmill. So then, an EKG was done for the first time since I've been ill
(about time), then the cardiologist looked at all the results and really
listened to my heart after the treadmill. Before the treadmill, he said,
sounds good. After the treadmill, he said (isn't this professional?)" one of
your valves is not pumping good and your heart sounds squishy" SQUISHY???


what that involved. No real pain, but I didn't know they made an opening on
your inner top thigh to hit the femoral vein to run the ****y camera on a
wire through. He was astounded when he found my arteries were clean as could
be. He just said, "well, I guess that's it" and I haven't seen him again.
Typical. If my arteries had been clogged, they would have gone ahead and
done angioplasty where they open the clogged artery with a balloon or stent.


in CFS patients, but then I'd had to explain what CFS and the heart have in
common. So, one of these days I'll see a different cardiologist who might
have a better idea...like physical therapy or oxygen or anything which might help my weakened heart.


the stress test, in which they also measure your BP, heart rate, and oxygen
levels. That is when they will find abnormalities, not before when you've
just been sitting down. I hope this helps.
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7 28th January 19:43
dawnsroses
External User
 
Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart stress down virus stent)


Thank you very much, that would be great. :-)

Tammi

I don't know. I will try to research this and look at my records to see what
they called my valve not pumping correctly. I can't answer that question
now. Dr. Martin Lerner is the cardiologist that thinks he has the link and
possible cure as he (debatably) thinks the heart valve and weakening heart
by virus is the real root of the problem. I'll send you a URL so you can see
what he is about. He'd know for sure. SUZQ : )
----- Original Message -----
From: "Tammi Cantrell"
Newsgroups: alt.med.cfs
To:
Sent: Wednesday, August 13, 2003 10:46 PM
Subject: Re: Lost the e-mail re: kind of test for heart valve prob.

block" or "left atrial enlargement" by chance? If anyone knows the answer,
please let me know as I noticed this on an old EKG done in 2001 but have no
idea as to what it means.


male I believe, asked how the docs could tell I had a heart valve problem.
The PCP that referred me to the cardiologist worked in the same building and
they shared info on patients a certain day of the week. This PCP knew about
CFS, as he had worked with Peterson in Incline Village at one time.


treadmill. So then, an EKG was done for the first time since I've been ill
(about time), then the cardiologist looked at all the results and really
listened to my heart after the treadmill. Before the treadmill, he said,
sounds good. After the treadmill, he said (isn't this professional?)" one of
your valves is not pumping good and your heart sounds squishy" SQUISHY???


what that involved. No real pain, but I didn't know they made an opening on
your inner top thigh to hit the femoral vein to run the ****y camera on a
wire through. He was astounded when he found my arteries were clean as could
be. He just said, "well, I guess that's it" and I haven't seen him again.
Typical. If my arteries had been clogged, they would have gone ahead and
done angioplasty where they open the clogged artery with a balloon or stent.


in CFS patients, but then I'd had to explain what CFS and the heart have in
common. So, one of these days I'll see a different cardiologist who might
have a better idea...like physical therapy or oxygen or anything which might help my weakened heart.


the stress test, in which they also measure your BP, heart rate, and oxygen
levels. That is when they will find abnormalities, not before when you've
just been sitting down. I hope this helps.

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8 28th January 19:43
dawnsroses
External User
 
Posts: 1
Default Lost the e-mail re: kind of test for heart valve prob. (heart stress ischemia down stent)


Hi, I had to have an ekg prior to foot surgery and it was done by a nurse and 'read' by someone in a lab somewhere, I suppose about a year ago; noticed it in my records, thus no cardiologist. I suppose you are correct that they would have brought it up if important, but on the other hand, I am curious about the correlation of heart probs with CFIDS. Thanks for your input! :-)

Tammi

a first degree AV block is diagnosed from an ekg when the PR interval increases. This can be due to several things, ischemia, problems in the electrical transmission of the heart among others. It's possible that a heart valve problem could cause these problems, but unlikely IMHO. These are questions you should be asking your cardiologist or whoever ran the ekg. I'd just call the doctor's office. I'm sure the nurse would know. It doesn't sound like a major problem, if it were you would have been run through more tests.
----- Original Message -----
From: Tammi Cantrell
Newsgroups: alt.med.cfs
To: CFS-L@MAELSTROM.STJOHNS.EDU
Sent: Wednesday, August 13, 2003 10:46 PM
Subject: Re: Lost the e-mail re: kind of test for heart valve prob.


Hi.

Does the valve defect have anything to do with "Borderline first degree AV block" or "left atrial enlargement" by chance? If anyone knows the answer, please let me know as I noticed this on an old EKG done in 2001 but have no idea as to what it means.

Thanks! :-)

Tammi

Susan Jones wrote:
Hi,
Sorry, I pressed a button and zip....away went the e-mail where someone, a male I believe, asked how the docs could tell I had a heart valve problem. The PCP that referred me to the cardiologist worked in the same building and they shared info on patients a certain day of the week. This PCP knew about CFS, as he had worked with Peterson in Incline Village at one time.

Anyway,they ordered a complete workup when I failed the stress test on the treadmill. So then, an EKG was done for the first time since I've been ill (about time), then the cardiologist looked at all the results and really listened to my heart after the treadmill. Before the treadmill, he said, sounds good. After the treadmill, he said (isn't this professional?)" one of your valves is not pumping good and your heart sounds squishy" SQUISHY???

So then an angiogram was ordered for the next morning. Little did I know what that involved. No real pain, but I didn't know they made an opening on your inner top thigh to hit the femoral vein to run the ****y camera on a wire through. He was astounded when he found my arteries were clean as could be. He just said, "well, I guess that's it" and I haven't seen him again. Typical. If my arteries had been clogged, they would have gone ahead and done angioplasty where they open the clogged artery with a balloon or stent.

What I wanted to tell him was that the upper left valve problem is common in CFS patients, but then I'd had to explain what CFS and the heart have in common. So, one of these days I'll see a different cardiologist who might have a better idea...like physical therapy or oxygen or anything which might help my weakened heart.

So if you have a heart workup or respiratory workup, have them do it AFTER the stress test, in which they also measure your BP, heart rate, and oxygen levels. That is when they will find abnormalities, not before when you've just been sitting down. I hope this helps.

SUZQ in Sin City


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