gunners house

My 5 year old son has just been officially diagnosed with TS. Now that
there is a name to put to his tics - what do I do?? He's, at this point,
what they consider to be mild and they say that we shoudl know within 5-7
years where he'll 'end up'??? At this point he demonstrates some motor tics
(hopping, fingers in the mouth-ALL THE TIME, snapping and smelling
everything) and many verbal - he makes 'huh, huh', 'whoo, whoo', throat
clearing and now rolling of words... (there are others too that come out).
We are kind of confused as to where to go from here. How do we help him,
educate him, support himm???

--

gunners house

My 5 year old son has just been officially diagnosed with TS. Now that
there is a name to put to his tics - what do I do?? He's, at this point,
what they consider to be mild and they say that we shoudl know within 5-7
years where he'll 'end up'??? At this point he demonstrates some motor tics
(hopping, fingers in the mouth-ALL THE TIME, snapping and smelling
everything) and many verbal - he makes 'huh, huh', 'whoo, whoo', throat
clearing and now rolling of words... (there are others too that come out).
We are kind of confused as to where to go from here. How do we help him,
educate him, support himm???

--

sandy l

You might also check out the webforum and chat rooms at Massachusetts
General Hospital. It is my sense that a larger percentage of parents of
small kids gather there.
The webforum is:
http://neuro-mancer.mgh.harvard.edu/...e=5&LastLogin=
The chatrooms are:
http://neuro-mancer.mgh.harvard.edu/brainchat
There are "classic," "advanced," and "virtual reality" chatrooms. The
tourette's room in the classic chatrooms is most active. The lobby of
the advanced rooms is a location for anyone and is usually active.

jodi

Hi Gunner,
Welcome to the group, glad you found us. My son is 11 and has TS.

Read read read. Here are some links to TS websites: http://tourettenowwhat.tripod.com/ http://www.tourettesyndrome.net/

Tics wax and wane. Sometimes he will get some real bothersome tics but then
they will go away. My son has what i call his *core* tics, they are always
there, the rest come and go.

Support him by just letting him be him. My son was dx'd around the same
age. I explained TS to him so that he would know what was going on, but
then tried to make it a no big deal thing. AFA educating him, some TS kids
have learning disabilities. Be on the lookout for them and have a learning
assessment done if you suspect it.

Take care,
Jodi

sandy l

You might also check out the webforum and chat rooms at Massachusetts
General Hospital. It is my sense that a larger percentage of parents of
small kids gather there.
The webforum is:
http://neuro-mancer.mgh.harvard.edu/...e=5&LastLogin=
The chatrooms are:
http://neuro-mancer.mgh.harvard.edu/brainchat
There are "classic," "advanced," and "virtual reality" chatrooms. The
tourette's room in the classic chatrooms is most active. The lobby of
the advanced rooms is a location for anyone and is usually active.

inventing

I am referring you to two sites that I think are especially helpful to the
family with a new diagnosis.

Check out
www.tourettesyndrome.net

and

http://tourettenowwhat.tripod.com

And keep returning here. I've been here about 8-10 years and have always
gotten good support and good advice. I don't remember exactly when I found
a.s.t. because those early years of my daughter's dx are still kinds of a
fog!

My daughter was dx at 11, TS/OCD/LD/ADHD. We worried and prayed over every
milestone of her life, especially since she tended to trip over them instead
of just reach them! She is 22 now, in college, living on her own,
supervisor at her work, asked for her advice and opinion, and managing life
just fine including all her tics. It's mostly mom (me) who still needs
reassurance and support!

still inventing,
KC

jodi

Hi Gunner,
Welcome to the group, glad you found us. My son is 11 and has TS.

Read read read. Here are some links to TS websites: http://tourettenowwhat.tripod.com/ http://www.tourettesyndrome.net/

Tics wax and wane. Sometimes he will get some real bothersome tics but then
they will go away. My son has what i call his *core* tics, they are always
there, the rest come and go.

Support him by just letting him be him. My son was dx'd around the same
age. I explained TS to him so that he would know what was going on, but
then tried to make it a no big deal thing. AFA educating him, some TS kids
have learning disabilities. Be on the lookout for them and have a learning
assessment done if you suspect it.

Take care,
Jodi

fenisz

You are very lucky that the TS was caught at such a young age. With patience
and understanding, there is hope that your son will live a very productive
life. There are tons of information on the internet about TS. You will not
have to work with the symptons that are going to cause him the most problems.
Good luck.
Fred

inventing

I am referring you to two sites that I think are especially helpful to the
family with a new diagnosis.

Check out
www.tourettesyndrome.net

and

http://tourettenowwhat.tripod.com

And keep returning here. I've been here about 8-10 years and have always
gotten good support and good advice. I don't remember exactly when I found
a.s.t. because those early years of my daughter's dx are still kinds of a
fog!

My daughter was dx at 11, TS/OCD/LD/ADHD. We worried and prayed over every
milestone of her life, especially since she tended to trip over them instead
of just reach them! She is 22 now, in college, living on her own,
supervisor at her work, asked for her advice and opinion, and managing life
just fine including all her tics. It's mostly mom (me) who still needs
reassurance and support!

still inventing,
KC

fenisz

You are very lucky that the TS was caught at such a young age. With patience
and understanding, there is hope that your son will live a very productive
life. There are tons of information on the internet about TS. You will not
have to work with the symptons that are going to cause him the most problems.
Good luck.
Fred