annemarie

A negative biopsy does not exclude celiac disease no matter what the gastro
says. However it could be something else causing your symptoms and the
gastro is the best place to get other possibilities explored.
If no diagnosis is found I suggest you try a gluten free diet and see if
your symptoms improve.

tamara

Hello
Im from Australia and the latest info on this sort of thing is that there is
full ceoliac, and non-ceoliac gluten intolerance which is supposed not to
show up on the biopsy but will register in the gluten anti-bodies blood
test, apparently with just the intolerance you do not have to cut out all
gluten, just enough to stop the symptoms. I myself have not had the biopsy ,
but my blood tests were positive and when I did the elimination diet tests
for gluten I was affected badly. I just accept it as ceoliac and eat
completely gluten free.
Tamara

tom moore

Tamara,

That's interesting "just enough to stop the symptoms". Here in the USA, at
least some of the researchers believe that gluten intolerance is merely an
early stage of CD, and that it will eventually progress to CD anyway. If
they are correct, then doing a "slovenly" GF diet would allow damage to
progress in the small intestine, with all the negative prospects that
entails (lymphoma, etc).

Tom - WI, USA

pb

Here here! There's no way that I'd intentionally eat gluten, absolutely
no way, no matter what I am told!!
P


--
Tom & Pat Bridges
Tropical Fish Hobbyists
Welland, ON Canada
http://www3.sympatico.ca/tp.bridges/

tamara

I myself also think it is better to cut it out altogether, to me it makes
more sense that the blood tests would be more accurate than the biopsy, my
doctor, an allergy and immune specialist believes that the blood test is
indicative of full ceoliac. The info I mentioned is what has been published
by the Ceoliac Society here. I think the gluten intolerance bit is because a
lot of people have trouble sticking to it, especially with trace amounts. I
know I have other intolerances to milk and eggs, but I am a bit slack with
avoiding them because the symptoms are not very severe and it makes cooking hard etc. Tamara

annemarie

Absolutely right. A totally gluten free diet is IMO the only way to go.

annemarie

Have you been gluten free for long? Your milk/dairy intolerance may resolve
itself.
Also even the egg. My Dad could not tolerate rice until he was gluten free
and then of course had a rice based cereal for breakfast every morning.
The Aus Celiac society and now NZ because we have taken Aus standards do not
promote totally gluten free diets. They suggest for instance that drinking
some beers is ok because it is filtered. I personally think this is a load
of Cr.. There are some gluten free beers brewed but these are expensive.
Some people are very sensitive and will get sick at the slightest
contamination, many of us will not feel it but I believe it is probably
still damaging us.

alan cocks

The Australian Society promotes a totally gluten free diet. It is the NZ
Society and possibly the medical profession in NZ who have been responsible
for the "Low Gluten" diet which has been re-introduced into the FSANZ
(ANZFA) standard.
The Australian Society has been apposed to a low gluten diet.

The Australian recommendation is "No Detectable Gluten".(It is currently
detectable at between 10 and 20 parts per million.
The NZ advice is no more gluten than 300 parts per million.

Hence the reason we now have 2 standards, Low Gluten & Gluten Free.
Low gluten foods are common in NZ, very rare in OZ.

not

drinking

load

miche

Hm. I've not heard anything about "low gluten foods" and I live in NZ
(granted, I am not celiac but wheat-intolerant, and am not a member of
the NZ Celiac Society).

I was also advised to cut wheat entirely out of my diet, not just reduce
it to a level where I was asymptomatic.

Miche

--
If you want to end war and stuff you got to sing loud.
-- Arlo Guthrie, "Alice's Restaurant"

annemarie

Don't see many low gluten foods here. Odd how perceptions are. I went to
the celiac society AGM and was told that seeing we were combining with Aus
that the standards would be lowered and when I emailed the dietician who
works for the celiac society here she said the same thing and then gave the
dodgy advise about the beer. Wonder which is the truth. I do know that
before combining that a totally gluten free diet was recommended and that
that standard has been somewhat lowered. Personally saying low gluten to me
is tantamount to saying low poison.