Hi Guys/Gals,
I am a 26 yo male with spastic diplega. About 7 months ago I had an
operation to get a baclofen pump installed to help with my CP. For
those of you that are not fimilar with it, a pump is installed in your
abdomen with a catheter that runs into a disk in your spine. The pump
slowly feeds medication to your spine which relaxes spastic muscles. I
notice a difference with it installed but not as great a difference as
I had hoped. My leg muscles feel a little more relaxed and I can stand
up better but there is not much difference in my walking. I was
wondering if anyone else has had one of these installed and what your
thoughts are.

Michael Archipley
http://www.cerebralpalsyforum.net

mark probert

My son has one since 11/26/96 and it helped greatly. Your problem may be
dosage, since the degree of release is dose specific. My son's is
programmed to give him a bolus at around 6:00 AM every day so that he
awakens looser. He does exercises at that time which his therapist feels
is more effective since he is looser.

What is your flow rate?

Not sure what my flow rate is...they adjusted me a little at my last
appt and I don't have the paper on me that shows the rate. I'll get it
at my next appt. and let you know. I am very curious as to what other
peoples flow rate is in relation to mine. My dr. did say that mine was
quite a bit lower than most. Maybe I'll start a survey on my forum to
get peoples ages and flow rates. Might be good for people to look at
and get comparisons. Thanks for the idea :-) I'll get back to you as
soon as I figure out what my rate is. Thanks for the reply!

-Mike
http://www.cerebralpalsyforum.net