14th May 19:17
SSNA Scoop 9-01-04 (virus stroke job cancer herpes)
SOCIAL SUPPORT NETWORKING ALLIANCE: Got a local or national event that needs
You are reading "The SSNA Scoop" for September 1, 2004.
The next SSNA Scoop will go out September 15, 2004. Be sure to send me your
NEW Scoop Announcements to be included in the next newsletter - ASAP!!!!!
Please be proactive and forward this twice-monthly newsletter to people you
feel will benefit from the information that is generated and encourage THEM
to forward too. Interested parties may include people on your contact list,
message boards, yahoo groups and newsletters that you put together for
informational purposes. Thank~You!!!
If you are a stay home Mom, Dad, Whatever OR have a second job that involves
having a website or information you'd like to have hosted
http://www.single-again.net will be hosting a directory for this type of
information. You can email ***la with the information at
International Herpes Week is coming up!!!
What are your plans for International Herpes Week? Do something to make a
difference in honor of International Herpes Week! Here are ways you can
http://www.yoshi2me.com/herpes-awareness.html <---We need MORE Letters and
http://www.yoshi2me.com/herpes-h-pals.html <---We need MORE H Pals--->
http://www.yoshi2me.com/true-stories.html <---We need MORE Stories--->
Does your social or support group need a web page? If you are in need of one
to help promote your activities please contact me and I'll put one together
for you. This is strictly a volunteer service and there is no charge as long
as your goals are for the good of the herpes community. If you already have
a page put together that you would like to host on various domains you might
consider contacting yoshi2me.com, herpesonline.org, wartsonline.org and
single-again.net for extra exposure. Write to:
Have you been dumped?
Are you single again?
INSPIRATIONAL HERPES STORIES:
Thanks You Guys!!! What a great way to reach out and give somebody hope.
NATIONAL & LOCAL EVENTS:
NATIONAL & LOCAL EVENT DETAILS:
H Club Autumn Party: A herpes social in London, England - Saturday September
4th at Matchbar. This event starts at 6:30 pm. There is currently a UK H Pal
representative. hdate.co.uk is also a way for folks in the UK to meet each
other, talk about herpes and place an online personals ad. hdate.co.uk is
and always will be "The Original Hdate." For more info:
Labor Day Social Gathering: September 5th at 2:00 pm. Hosted by Oklahoma
Friends. Check out Lori's Oklahoma Herpes Story. If you live in Oklahoma
feel free to participate on the Oklahoma H Club message board. For more
Rose City Summer Wrap Up ~ September 10 - 12, 2004. For more info:
Hevent 2004 ~ Australia's National Herpes Gathering ~ October 15 - 17, 2004.
For more info:
Escape the Winter Blues Cruise ~ Jan. 30th - Feb. 6th 2005 on the Carnival
Valor. Presented by Portland Area Friends. We are off to the Eastern
Caribbean. This event is also listed under Florida on the SSNA because the
cruise ship leaves out of Miami. For more info:
Friends Over Texas 2005 ~ May 12 - 15, 2005.
This event is hosted by DFW Friends. Thursday is a meet and greet for the
early birds, no time has been determined. Friday is check-in with a meet and
greet, with a cash bar and Hors d' oeuvres starting at 4:00 pm. Saturday is
the Dinner/Dance, Cash bar starting at 6:00 pm, Dinner at 7:30 pm, Dance at
8:30 pm - Midnight. We are staying at the fabulous Radisson Hotel in Fort
Worth and have a great rate of $95.00. The rate of this event has not yet
been determined. Check back soon for more details... We are expecting
150-200 people so it will be a PARTY!!
HELP GROUP ANNOUNCEMENTS:
Omaha HELP ~ Melanie our Medical Advisor will be coming to our next support
group meeting in September. Take good notes and bring your questions with
you. For more info:
Jacksonville HELP ~ BRAND NEW HELP GROUP!!! For more info:
ADVOCACY, AWARENESS AND MEDIA OPPORTUNITIES
MTV's Fight For Your Rights: Protect Yourself
As part of our annual pro-social Fight For Your Rights campaign, MTV
provides programming that focuses on issues that are of top priority to our
viewing audience- According to a recent poll conducted by MTV & The Kaiser
Family Foundation, ***ual health remains one of the issues young people are
most concerned about.
Our campaign this year, entitled Fight For Your Rights: Protect Yourself has
been airing shows, live specials, and do***entaries that focus on ***ual
health and information regarding STI's. We have found that one of the most
effective ways to drive home the importance of safer *** is by profiling
young people who have experienced first-hand what it is like to contract an
STI. We are currently looking for young people between the ages of 18-25
who have contracted Herpes through ***ual contact, and might be interested
in discussing with us the possibility of being profiled in our show.
All correspondence will remain confidential, and if you would like more
information on the show, it's goals, and our past programming, please feel
free to email me and I will provide you with as much information as I can.
Information on the FFYR campaign can be found at the following link:
Thanks in advance for your consideration-
MTV News & Docs
Concert Tour to Promote Cervical Cancer Awareness
Christine Baze to Launch
Concert Tour to Promote Cervical Cancer Awareness
Musician and cervical cancer survivor Christine Baze will launch her Yellow
Umbrella Tour this fall to raise awareness about cervical cancer and the
need for women to take charge of their health through regular screening
using the most advanced testing technologies available.
Christine has been a key supporter of Women In Government's "Challenge to
Eliminate Cervical Cancer" campaign. She
has spoken to our members, state legislatures and the media about her story
and the opportunity to finally eliminate cervical cancer through new
technologies such as HPV testing.
For more information on Christine's tour, including locations and
dates, please visit: http://www.popsmear.org
Have you ever had an abnormal pap or "high risk" HPV test? You may be
eligible to participate in up to two clinical research studies on cervical
cancer prevention now being conducted at the Universities of California at
Los Angeles and Irvine. This is a two phase study: first, we will test women
with abnormal Pap tests for HPV infection and type their virus; second,
women will be followed for up to six months and women who continue to test
positive for HPV-16 infection may be eligible for a study to test whether
women treated with a vaccine clear their infections faster than do women who
receive placebo (sterile water). Participating in the screening study does
not obligate you to participate in the vaccine trial, even if you are
eligible. However, if you believe that you would never consider
participating in such a trial, you are ineligible for the screening study.
Otherwise, you may be eligible if you:
· Are now 18 to 50 years old
· Have had one or more abnormal Pap tests in the last 12 months
· Have had one or more menstrual periods within the last year
· Are not now pregnant or planning to become pregnant over this next year
· Are not HIV infected
· Have never tested positive for Tuberculosis by skin test (also called "PPD
· Have not received BCG vaccination in your lifetime
If you are interested in being evaluated for this study, you may call our
office at 310-825-0803 to receive a confidential, preliminary screening
evaluation over the phone.
You will not be asked to provide any identifying information during the
Please visit our website for more information on HPV:
You may also send us an email at:
Dr. Dorothy Wiley
UCLA School of Nursing
International Herpes Week is run by the International Herpes Alliance (IHA),
an international charity dedicated to providing information and support to
the millions of people with herpes around the world. This year's campaign
will run from 10th - 16th October 2004 and will focus on addressing the
social stigma of herpes - it will be the fifth year of the campaign. The IHA
is a global association of patient support organizations and health
professionals concerned about genital herpes. ~ IHA For more info:
The American Social Health Association has been your partner for personal
health since 1914: The Herpes Resource Center needs your help - either by
donating to the Resource Center or by renewing your subscription to their
quarterly journal on HSV issues, the helper. The helper has undergone some
changes in the past year, and now provides readers with more in depth
coverage and diverse feature articles. Renewing your subscription to the
helper will enable the Herpes Resource Center (HRC) to continue providing
accurate and up-to-date information about herpes, to be a voice to increase
public awareness through the mass media, and to be an advocate for
responsible national policies for treatment and prevention. If you would
like to order a subscription or simply make a donation check out the Herpes
Resource Center Web Site. ~ ASHA For more info:
HOT TOPICS AND ARTICLES OF INTEREST
1. Theme and logo for International Herpes Week 2004 unveiled
2. Results of the first IHA Voting Poll announced
3. Don't take a holiday from safer ***!
4. Stigma surrounding STDs a threat to the UK's health
5. XV International AIDS Conference (IAC)
6. Infectious Diseases: August 1, 2004
7. FDA Approves Herpes Antibody Test
8. Abstinence only?
9. Two-year study to link herpes, HIV treatment in *** men
10. Invite which could save a life
COMMENTS, QUESTIONS AND SUGGESTIONS FROM OUR READERS
Anyways, your website is awesome... I know it helped me a lot, its been
about a year and herpes doesn't really seem that bad to me anymore (although
of course i would love to stop having reoccurrences like you). Best wishes,
STD MESSAGE BOARDS And ONLINE HERPES SUPPORT GROUPS
~ There were no message boards or online herpes support groups this time
around folks! ~
MORE WAYS TO NETWORK
BLOGGERS, BLOG SPOTS AND ONLINE JOURNALS
Poems, Short Stories, and Quotes
We are each of us Angels with only one wing, and we can only fly embracing
one another. - Liciano de Crescenzo
SSNA Kitchen Cooks
~ There were no favorite recipes shared by our readers this time around! ~
SSNA Scoop Personals
Send me your personal ads to be listed in the next newsletter. We will
feature bachelors and bachelorettes looking for Love. (You don't have to
have herpes to participate)
Did You Know Stroke is our Nation's 3rd Leading Killer?
Dear Family and Friends,
I apologize that some of you are getting this for the 2nd time. With the
wonderful world of computer I ran into some problem (can you imagine!) So I
had to send this again. If you are REALLY mad, send me a e-mail and I will
add 5 miles to my train schedule next week to make up for it. But this is a
one time offer! (and it's going to cost you....probably a donation!)
Get ready for some shocking news! I am training to walk a 26.2 mile MARATHON
to benefit the American Stroke Association. We all knew I was crazy, so here
is the actual proof!
No, I haven't lost my mind! By joining the American Stroke Association's
Train To End Stroke program, I have a coach, a team, training schedules,
clinics, and a reason that makes this more than a personal goal. I am
helping to raise funds for stroke research, education, and advocacy
My grandfather, Papa died of a stroke when I was very young, and my Nana had
a mild stroke just last year. So as you can see, this isn't something that
happens to "other people."
The following are some stroke statistics of which you may not be aware...
Every 45 seconds someone suffers a stroke
Every 3.1 minutes someone dies of a stroke
There are 4.4 million stroke survivors
29% of people who have strokes are under age 65.
Over the course of the next 5 months, I will be walking and running hundreds
of miles to prepare. I will also be busy raising thousands of dollars for
the American Stroke Association. I am writing to ask for your support in
this effort through your good thoughts and through your generous
contribution to the American Stroke Association.
I am excited about participating in this event on behalf of many who couldn'
t even walk it due to a stroke. Please join me in reaching the finish line
of my fundraising goal and helping end stroke.
P.S. Although the marathon is not until January 2005, my plan is to have my
fundraising goal met by October. Your tax-deductible contribution, sent as
soon as possible, is greatly appreciated! Every dollar makes a difference
toward stroke research and education. If your company has a matching gift
program, please send me the matching gift form along with your check and
potentially double your donation!
Visit my personal web page and help me in my efforts to support ASA - FPA -
The SSNA Scoop:
SSNA Mission Statement:
Social Support Networking Alliance (SSNA):
Terms of Service:
Email your Herpes - HPV or STD Story, Poem, News Item, Article, Rant/Rave,
Letter or Event Group Listings for the next SSNA Networking Announcements ~
Make a Difference!!!
For more info: firstname.lastname@example.org