TX and scar tissue question
Dear Spidey,
Well, that certainly raises a big "hmmmmm."
The other big 'hmmmmm" is that here I am with all these weird secondary
effects, but I'm sure there is no way my doctor is reporting them. How many
other people have all kinds of weird stuff going on? I suspect they only
report these things if you happen to be in a study, so the documentation
just doesn't exist.
For example, there was a very nice guy on the other ng, back when it was
still a viable ng, who ended up with polymyositis after tx. He said that
this was a very rare reaction to IFN and that there weren't many cases. Now
many years later, I've tried doing a web search and I can't find reference
to this anywhere. Shouldn't this come up on a search by now? He's still
disabled, so it's not like it was something that went away later. And
surpriseingly he WAS in a study and one of the reasons they didn't pull him
off his 18 month course of tx is because they apparently wanted to see what
would happen!
Lana
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