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1 14th April 18:32
carloswa
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Posts: 1
Default wrinkle on the retina (macular)


The doctor noticed a wrinkle on the retina of one of mu eyes in July
2002 which did not affect my vision. About three weeks ago I noticed
that vertical lines were distorted and my reading vision has been
significantly decreased . An emergencydocor saw me on Nov 17 and told
me that the wrinkle had increased. I will be seing my regular doctor
on Monday.

I read that the treatment for the wrinkle (macular pucker) is an
operation. Should this operation be made as soon as possible? If not,
how long can it wait without creating irreversible effects?

Thanks,
Carlos

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2 14th April 18:33
czf
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Posts: 1
Default wrinkle on the retina (macular)


GET TO A RETINAL SURGEON RIGHT NOW!

I have had two episodes of idiopathic posterior uveitis which caused MASSIVE
macular puckering, and I am now legally blind.

RUN!
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3 14th April 18:33
glenn hagele - council for refractive surgery quality assurance
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Posts: 1
Default wrinkle on the retina (retina)


I tend to agree. If your regular retina specialist is not available
at his or her office, go through your hospital's emergency room or
urgent care center and have them get you seen by the on-call retina
specialist. You should not wait.

Glenn Hagele
Executive Director
Council for Refractive Surgery Quality Assurance
http://www.USAeyes.org
http://www.ComplicatedEyes.org
glenn dot hagele at usaeyes dot org

I am not a doctor.
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4 14th April 18:33
carloswa
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Posts: 1
Default wrinkle on the retina (retina)


I am scheduled to see my retina specialist on Mondday. I was seen at
hspital emergency on Nov 17. Since then there has been very little
chnage. Thank you for your suggestions. I am in Canada and we have
government insurance. The problem is that we may not get the treatment
when we need it. Doctors are extremely busy. I just wanted to get an
idea of how long I can wait for an operation. I guess it is hard to
tell without an specilaist lookint at the eye. I just wanted to know
how much to press my doctor for early surgery or whether I should fly
to another country and get paid treatment which will be immediate if
needed.

Txs,
Carlos


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5 14th April 18:33
john blake
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Posts: 1
Default wrinkle on the retina (diabetes)


====

Agree that seeing a retina specialist is/was
a good idea. I developed a similar problem
with one eye in '92, but there's been little
change since then. Instead of typical macular
pucker caused by a film-like obstruction of
the macula, this was diagnosed as retinal
fibrosis, a macula/retina wrinkling caused by
new tiny vein growth. Alternating letters in
text blur from the wrinkling (different focal
planes), and an Amsler Grid pattern (try a
gooogle.com search) will be warped according
to the severity of the wrinkling. The
specialist did not suggest surgery, which
itself can create future problems. Clearly
it's important to try and pin down the cause
of retinal/macula wrinkling, then a solution,
if possible. Consider diabetes and avoiding
any alcohol.
John
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6 15th April 03:10
czf
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Posts: 1
Default wrinkle on the retina (angiography)


Whoa, John, how often do you have fluoroscein angiography done?
Neovascularization can cause blindness, too. When caught early, they can be
lasered off, usually resulting in only the loss of the vision that you
currently experience (look at your Amsler). If left unchecked,
neovascularization can multiple rapidly (which is why you should do your
Amsler's daily).

Neovascularization set in over my macular puckers (caused by idiopathic
posterior uveitis) and now my retinas look like a tropical rain forest. But
my retinal surgeon won't touch them for fear that I could potentially lose
what little sight I have left.

I wish the community of retinal surgeons had been a little more aware when
this first happened to me 20 years ago (I even had specialists from Duke fly
in just to look at my retinas - the condition was so foreign back then).
Fortunately, great strides have occurred during these years and folks
experiencing new symptoms *now* have a much greater chance of keeping more
of their sight.

Right now I'm waiting for a) an undifferentiated stem cell to regenerate my
retinas - banned in the US, b) a brain microchip/eyeglass videocamera
setup - research halted in the US, c) retinal transplant - first attempts
haven't succeeded, or d) a Geordi LaForge visor - whichever comes first.

Okay, I'll get off my soapbox now ;-)
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7 15th April 18:14
carloswa
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Posts: 1
Default wrinkle on the retina


You seem to be able to write without typing errors. This impaired
vision is new to me and I tried to adjust my computer display setings.
Not easy... or is there anoter way? I made adjustments in Windowns >
Display > Properties. Still when I use applications (IE, WordPerfect,
Word, Quicken, Eudora, Adobe Photo Elements and others) I find that I
have to adjust each one which in turns changes the display of others.
This is taking me much time and I would appreciate receiving any tips
or being pointed to web sites with instrutions on how to this
efficiently.

Txs, Carlos


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8 19th April 14:48
czf
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Posts: 1
Default wrinkle on the retina (macular)


First of all, I'm from the "old school" - when I went to high school, you
could not graduate without learning how to type at *least* 40 wpm with no
errors - on a MANUAL typewriter! So I've always had excellent touch typing
skills. Keyboards come with two raised lines on the F and the J keys - I
feel for that position, and then I'm golden.

My level of sight loss is to the point where I cannot read at all. There
was no "in between time" where I could use a computer with larger fonts or
anything. It went from all to nothing. I use a screenreading program
called JAWS for Windows. It works with text as well as graphics. Perhaps
some of our macular degenerations folks (Dan Roberts??) may be able to help
you with monitor settings.

Keep me (us) posted on your progress. We CARE!
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9 20th April 15:36
carloswa
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Posts: 1
Default wrinkle on the retina (accessibility)


Thanlk you all who reply to my posts.

Respecting my eye.

Yestesrday I saw my retine specialist and he found I had 4 problems in
the eye.

1 Possible liquid in the eye. He needs to test to ensure all is
well. I will have an Angiogram. I did have liquid in the eye about 16
years ago and no problem sonce so I expect that the test will show no
new problems.
2 Tear in he retina (small). He will treat it with laser on Dec
10. This is required before the wrinkle can be removed. This will
cause a wait time for the removal of the wrinkle of 3 months. I wonder
if the wrinkle caused the tear.
3 Cataracts in both eyes Severity of 1 in scale of 4. He needs
the one on the right eye removed before he can do surgery to remove
the wrinkle. He asid the needs a clear vision of the back of the eye.
He told me that after this surgery no significant wait is required to
remove the wrinkle because they affect different parts of the eye.
4 Operation to remove wrinkle hopefully in 3 months.

Well...there is hope. Does this process sound OK?

Respecting the computer:

Yes I will have to learn touch typing.
I managed to set up my monitor fonts and colors to the point where I
can read them, Still there are some applications showing unredable (by
me) colors for some panels. I will look into JAWS for Windows a
program that reads the text on the screen. I will also be looking into
voice to text capture programs.

I discovered that Windows XP under Programs > Accessories >
Accessibility> Magnifier has a feature that creates a windo on the top
of the screen that magnifies to any desired size the text where you
place your cursor or mouse pointer. It has been very helpful.

Regards,
Carlos

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10 21st April 19:13
czf
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Posts: 1
Default wrinkle on the retina


I am not a doctor, but it sounds like your doctor did an extensive
examination and has a plan. Excellent news, Carlos!


I am so happy to hear that you have found some adaptive technology to help
you out in the meantime.

To quote a line from an old folk song:

"Don't it always seem to go
That you don't know what you've got til it's gone..."

Good luck, Carlos, and drop us a line after the "wrinkle removal" surgery.
I am most curious to see how it all goes. Best wishes!
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