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1 22nd May 07:14
karen bezants
External User
 
Posts: 1
Default skin damage through steroid treatment


Although I suffer from eczema rather than psoriasis, I wondered if any P
sufferers had suffered the effects of long-term use of topical steroid use
as I have. I first posted this to a pharmacy newsgroup who seemed to be
extremely defensive about the pharmaceutical companies (why aren't I
suprised?). Anyway, to clarify before anyone here thinks I am asking for a
huge compo pay-out - I don't want money, I just want help. The companies
who supplied the drugs which permanently damaged my skin don't seem to have
any interest in developing anything to help correct it or protect it.

This is my original post - is anyone else here suffering similar problems?

"Does anyone know of any action being taken against a pharmaceutical
manufacturer due to skin damage following long-term use of steriod
creams/ointments for treatment of eczema? I have extremely thin skin
(mainly on my hands) following years of being subscribed and using Betnovate
ointment and Nerisone oily cream which began during the 1960s, right up
until 2 years ago.

Is anyone else in a similar position? I do not know how long my skin will
last! A slight knock causes me to bleed copiously and the bleeds and
bruising under my skin (clearly visible) are extremely unsightly and
distressing. I am 43 years old and have the skin of a 90 year old."
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2 22nd May 07:14
ranhub11
External User
 
Posts: 1
Default skin damage through steroid treatment


You need to talk to evetsm. Go to http://www.deja.com and goolge
him. I think his link is evetsm@rocketmail.com


Many here, most likely. Go to http://www.psoriasis.org and do a
search.

Or use the http://www.deja.com engine and search your steroids with
keywords: [psoriasis] over use side effects, i was vain i think? and thinning lol


Walked right into the lions cage did you?

It seems to me that you screwed your skin and now your hiding behind the doctors and pharma's.

Only a few thousand in this grouP at any given time.

Why would a derm leave you on them for so long?

Sue the messenger not the message in this case.

I'd bet your best case is again't them and not the pharma's.

Provided you have a case.

The idiots in California sued the tar makers.

But low dose tar works better then higher doses anyway it seems.

At least for mild to moderate p sufferers.

Why don't you try to re-heal your skin with wheatgrass juice.

It's suppose to work better for atopy like yours anyway.

(http://www.wheatgrassactive.com)

http://www.wheatgrassactive.com/order_oseas.htm

More then you'll ever find on any label, lol
http://wheatgrass.com/introtowg/cgbook.html

(Go for it tim!)

Get down and dirty with grass factoids.

Or is alcohol the only thing on your mind? lol

Once again. Who would continue to prescribe to you?

Are you like that rush limbaugh guy? Doctor shopping are we?

Quick hide your medical records or the goverment may toss
your rear end in jail, lady!


You may want to try this post in a legal newsgroup, next. lol

Well, if it gives out around here, your gonna have to clean it up. lol

If i were you. I'd stop putting anything at all on it.
Take flax seed oil once a day. One tablespoon/day.

And try the wheatgrass spray on half of your problem skin.

And then come back here in a month or so and let us know
if it looks better then the non treated side.

Thats what i'd do.
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3 22nd May 07:14
kim
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Posts: 1
Default skin damage through steroid treatment


The problem with what you seem to be asking is that the problem isn't
with the manufacturer, it's with improper use of the product. Package
inserts and other places warn against long term continual (THAT's the
key, BTW, NOT just long term - steroids should be pulse used to avoid
this) use because of things like skin damage, a known potential side
effect. But that doesn't make the product defective and therefore
liable in a lawsuit, since the problem does not occur with proper use
(except in very very very rare case of idiocyncratic reactions).

The real problem is with the doctor(s) who provided you with the
prescriptions that allowed you to misuse the drugs to the point of
creating such problems and ignored the signs or didn't sufficiently
monitor your use. If you're looking to sue, they're the ones to go
after since they are the ones who created the problem, not the
manufacturer.

Back to your original question - search the archives if you want
(tools at http://www.pinch.com/skin ) - of course we've had people
with steroid misuse problems like that. In fact, that was part of the
big fuss with Skin Cap and its lying about containing steroids.
because people were slathering it on too often for too long in the
belief that it was harm free. I do believe there was a lawsuit against
them based upon some of those problems, although I don't know the
results..

The skin thinning is normally eventually reversible on its own after
you stop using the steroids, although it can take quite a while and
any associated striations are not thought to be. I'm not sure what
you espect the manufacturers to do. They can't necessarily come up
with something that will reverse the damange and the damage came frm
misuse of a product that helps many people when used properly, so it's
not fair to ask them to change it or stop making it.

Sorry, not what you want to hear, I'm sure. What you need to do is
talk to a derm with some expertise about such damage who may know ways
to help reverse the damage that I don't and that it's not necessarily
the drug company's responsibility to know about even if it was misuse
of thier product that lead to it.

Good luck
Kim


The psoriasis newsgroup FAQ can be found
at http://www.psoriasisfaq.com
and posted twice monthly to a ng near you.
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4 22nd May 07:14
dick
External User
 
Posts: 1
Default skin damage through steroid treatment


You want to bite the companies that gave you a product you used for
years? What a "victim" mentality. People blame the trial lawyers,
but it is attitudes like yours that feed the lawyers and settlements
that raise the cost of pharmaceuticals. Grow up. Take responsibility
for your own actions. Find another dermatologist.
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5 22nd May 07:15
dr. chris
External User
 
Posts: 1
Default skin damage through steroid treatment


Steroid damaged skin has become a pandemic problem and everyone blames the
doctors. Being one myself, I know how extremely difficult it is to control
severe eczema in the long term without atrophying the patient's skin. But
then, what else has there ever been on offer from the pharmaceutical
industry but imunosuppressants? Without getting into a debate about who's
the guilty party (sometimes patients also overdo it with steroids), this is
an area where I am fairly confident I can help you using my wheatgrass
extract.
Please take a look at my website (which is non-commercial), for an example
of a patient with severe steroid damage who recovered very well after three
months using wheatgrass extract. I have had numerous patients like this
young woman who have enjoyed similar successful outcomes.

http://www.wheatgrassprofessional.info/steroid_recovery.htm

If you like, I will give you some wheatgrass concentrate to try. No strings.
No charge. No commercial labels. Just let me know and I'll send it to you.

Kind regards,
Dr. Chris Reynolds.


--
Wheatgrass for Health Professionals
http://www.wheatgrassprofessional.info
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6 22nd May 07:16
kim
External User
 
Posts: 1
Default skin damage through steroid treatment


Abuse report sent in for once again pushing your website and products
inappropriately, regardless of whether there is any cash exchanging
hands. She didn't ask for new product suggestions, she asked about
lawsuits and others with the same problems..

With a lot of other nonsense in your post, starting with the
implication that all immunosuppressants are what atrophy the skin,
which is incorrect to begin with, but particularly disingenuous while
you're pushing your wheatgrass as an immunosuppressant and still
claiming to be confident you can help her with it. Right.

Kim


The psoriasis newsgroup FAQ can be found
at http://www.psoriasisfaq.com
and posted twice monthly to a ng near you.
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7 22nd May 07:16
uraqt2
External User
 
Posts: 1
Default skin damage through steroid treatment


Ridiculous!

Dr. Reynolds offers an alternative free of charge from a purely
altruistic effort to help, so Kim sends an abuse report.

Perhaps if Kim suffers from plaque P she might find relief too by trying
the product. She will never know if she doesn't try and Dr. Reynolds is
offering to provide it _completely free_ to any of us that care to give
it a try. Show me, if you will, exactly what he gains by doing that.

Speaking only from personal experience, I am steroid free and my P is
better than it has ever been since using wheatgrass spray for just over
a year.

Oh well, on man's relief is another person's poison - or something like
that.

Some people are just so cynical that they can't believe someone like him
would want to help us without having some selfish motive. I feel sorry
for people like that.
--
Chuck
-ô¿ô-
~
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8 22nd May 07:16
dr. chris
External User
 
Posts: 1
Default skin damage through steroid treatment


At first I couldn't understand your (rather aggressive) reaction to my
posting, but when I realised my email address was not the one I intended to
use, it made sense. For this I sincerely apologise and have remedied the
situation.
Human errors notwithstanding, my website is completely non-commercial and
the core subject matter is wheatgrass, not as an immunosuppressant, but as
an immunomodulator. Although there is no mention of products, there is an
idea that I am trying to get across to those who are prepared to listen. An
idea from which many are benefitting. If you feel that is a problem, perhaps
you might consider lodging an abuse report for original thought as well.

Dr. Chris Reynolds.


--
Wheatgrass for Health Professionals
http://www.wheatgrassprofessional.info
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9 22nd May 07:17
jxstern
External User
 
Posts: 1
Default skin damage through steroid treatment


Yeah that's why these newsgroups are full of legitimate doctors and
researchers advising patients they have never seen to use free samples
of homeopathic stuff (garden clippings in this case) they are selling
on adjacent websites.

J.
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10 22nd May 07:17
uraqt2
External User
 
Posts: 1
Default skin damage through steroid treatment


J rather than flaming Dr. Reynolds, why don't you take him up on his
offer of free wheatgrass spray and give a try? You have nothing to lose
and he will provide it to you completely free of charge. After all, it
costs him quite a little bit just to mail it half way around the world.

Oh, I forgot, J done plonked me because he can't tolerate the truth.

--
Chuck
-ô¿ô-
~
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