Prostatitisedo 2009-05-15 05:47:31
Are there any actual patients here who have seen Federico Guercini M.D.
in Rome? I have prostatitis, extensive calification of the prostate,
and a blockage of one ejaculatory duct caused by all the swelling,
which surgery has not fixed.
I really need some hope that my infection can be cured and that
something can cure the prostatitis and ejaculatory duct obstruction and
stop all the pain. You can email me or post here. Please no negative
posts or spam.
Pete 2009-05-15 12:31:24
Robert…I don’t know where you live, and if you are looking to see Dr.
Guercini in Rome as a second opinion, or what. I live in Maryland, USA,
(and do not have the exact same condition you do), but I just wanted to let
you know you are not alone in your suffering, and I totally sympathize with
you, and my heart goes out to you. I too need some hope and it is hard for
me to go on – especially living by myself – I don’t have any ones shoulder
to cry on – LOL. I have been suffering for months with prostatitis which
has been exacerbated and made much worse by the TURP I had five weeks ago,
and instead of getting better I get worse (i.e. it is not healing properly
Have been back to uro who did TURP three times and he says wait. Went to
another city for second opinion and he says wait (didn’t even examine me).
Been to my doctor (mostly for pain control discussion -I can’t take opiates
or amitriptyline since they constipate me). He would not give me a blast
dose of prednisone (nasty anti-inflammatory drug which lowers your immune
system and has hordes of bad side effects) since it was not in his training
to prescribe it for prostate related problems, and said he doesn’t do
prostates (isn’t it wonderful). I have taken prednisone several times in my
life for sarcoidosis, and post operative inflammation stuff, and respiratory
related problems, and really shouldn’t take it now since I have a serious T4
cell deficiency ( non- HIV, cause unknown). But I am desperate and it may
help the massive inflammation that I know exists in my prostate and
urethra/bladder and whole pelvic floor, including the r*****. I have been
on four different antis almost non stop for months (mostly on my own doing
as a prophylactic). I do not believe it is infectious since previous urine
samples and prostate secretions did not indicate so. But the son of a b****
is eating me alive, and the TURP has ruined me. The pain and discomfort is
indescribable, 24 hours non-stop.
Have been to my general surgeon, who gave me a digital, but wouldn’t agree
to an exam under anesthesia [i.e., the specula (shoehorn) exam – I can’t
handle the prep for a colonoscopy right now – which my gastro wants to do].
I asked the surgeon how does he know I don’t have proctitis or a massive
yeast infection and he said if I had proctitis I should be bleeding and he
has never seen yeast in the r***** (I have a lot of itching in the r*****
also). He suggested trying neurontin (an anti seizure GABA type drug that
is also used for various pain syndromes (but mainly shingles). I am giving
it a try but it could take a week or more to help (if it helps – which I
doubt it will). NSAIDS do not help and I can’t take a lot of them because I
also have stomach problems and take PPI’s. There is a drug called cytotec
to take with NSAIDS but I am taking enough pills already and do not want to
take it since the NSAIDS don’t help anyway even at higher doses.
I have a lot of pain and burning from my urethra to my bladder and in my
prostate, and pain and pressure in my r*****, and it feels like I have pee
(real bad) all the time (even right after I go – what a horrible feeling),
non stop 24 hours a day (can’t sleep or eat or function). If I wasn’t
retired I would not be able to go to work. I retired early from the DOD
when president Clinton downsized the department of defense if you may
recall. Sorry I’m rattling on, just need to talk to someone.
This group used to be pretty good back in 1997 when there were several
doctors involved and a lot of suffering prostatitis persons just like you
and me. The participants seem to have dropped drastically (based on the
numbers and frequency of the posts), and we appear to have lost the doctors.
There is also the prostate.bph group which seems to have more participants.
IMO prostatitis and bph go hand in hand (but you can certainly have one
without the other). But when you have both, forget asking the uro which one
he thinks is causing the bigger problem.
I’m sorry I got so carried away telling you about my problems Robert (just
wanted to let you know you are not alone and maybe try to offer some moral
support). I will ask a couple questions about your condition now (please
write me back -and don’t forget to tell me where you live). How did they
find out about the blockage of the one ejaculatory duct and what type of
surgery did they do to try to correct it. I was told mild calcification is
okay and normal as you get older, but you said you have extensive. How
would they correct that. I am told that there is not a urologist on the
planet that will remove a prostate unless it is cancerous, so I am curious
how they would correct extensive calcification. You also mention you have
an infection – how did they identify it and what kind of antis are you
I have been in severe pain three times in my life, which I consider
equivalent to child birth (which I can only assume) and kidney stones (which
I have witnessed). Anything much worse than that, I believe you would pass
out. There are all kinds of pain (e.g., sharp and dull back pain, tooth
ache, debilitating nausea, severe malaise, various cancer pain, etc.). But
I believe the non stop pain and discomfort I have right now and have had for
five weeks since my TURP, and the similar pain before the TURP, is enough to
make a grown man cry. I do not cry, but it is difficult to deal with day
after day, with basically no help from the medical world. I believe this is
just as bad or worse than having cancer, since cancer patients usually don’t
suffer real bad till near the end (of course it depends on the type of
cancer you have – I am somewhat medically literate). But I think you get my
point. I would like to see one of my doctors deal with this, and see what
they would do (that is not to say I am wishing it on anyone).
Robert, if you were able to get through this long post, please write me back
(just take the “nospam.” out of my address if you want to write me
directly). I will also send this directly to your e-mail address. I am 57
years old, have been married twice, and am a retired naval architect who
used to design ships for the navy, and I live by myself with my two cats. I
wish you the very best, and hang in there, just as I am trying to do.
Coilman 2009-05-15 12:31:41
Months? Been about 20 years here and I consider myself as new to it all. You
just get on with it. That’s how you cope.
Oh and I had decided a long time ago never to have a prostate operation. I
am decidedly untrusting of surgeons. They seem to think the knife cures all.
So, no matter what, no cutting.
I take Saw Palmetto only.
Yep. Causes bone density loss.
A lot of us suffer the same. I cant always walk a straight line without
bowing to someone with the pain. It doesnt happen that way every day but
when it’s on, it certainly is on. Doing a c*** is a nightmare as a result.
Interestingly, strong coffee makes the c*** much easier to do.
I feel you are concentrating on the problem too much. I take the view that
it’s there and that there is nothing that can honestly be done to cure it so
I take Saw Palmetto and otherwise forget about it when I can. Sure I feel
overwhelmingly tired all the time and sure the pain is bad at times but you
know, I know a lady who is dying of cancer and it is now in the bones. She
is rotting from the inside out. She chose never to have chemo to fight it
and wanted to die with as much dignity as she could. So when the pain got
too bad and they put her in hospital and on morpheine (where her neck was
ruled broken because it, too, is rotting due to cancer) and the poor thing
was not really all that aware of her surroundings, her grieving family
forced chemo on her. She, now, will die in about 3 months with no dignity as
opposed to days from now with a lot more dignity.
I relate all that to prove there are worse ways to die. If you have no-one
to think of in order to leave money to and so on, you can basically do what
you want but if you have someone who needs the money after you are gone, you
just have to grin and curse.
So imagine me – I have to work and have all that, too. Stop worrying so much
Mo 2009-05-15 12:31:45
pete, i am going to tell you a secret because i read your post and felt
sorry for you, take your a** to the nearest drug store and get you some
make sure it has at least 40 mg of simenthicone in it.take 2 table
spoons as soon as you get it. then take 1 table spoon when you finish
i wil guarantee you will feel much better tomorrow.
Bo l. 2009-05-15 12:31:48
I have not heard of any studies showing this. For serious discussions of
prostatitis, go to www.chronicpelvicpain.us
Pete 2009-05-15 12:31:54
Coilman…you are not a very sympathetic person and I don’t think you know
what the h*** you are talking about. I usually don’t write like this, or
get involved with spam, but you ticked me off. I try to offer encouragement
to others in the group and not play mister tough guy. I participated a lot
in the group back in 1997, but the group has changed a lot, like I said.
of time writing my post to him. You come off with this c*** that you have
had prostatitis pain for 20 years, and you bear with it, and go to work…da
da da da. Let me tell you if you had the non stop pain I am talking about
(not every now and then), you would not be going to work and would probably
be considering suicide. I too have had prostatitis on and off for some
years (as well as other serious pain syndromes), but not as bad as this one.
I told you this recent episode was exacerbated by the TURP (which I agreed
to because I was having trouble peeing).
And as far as your statement that you refuse to be cut by a surgeon, that is
totally ludicrous. If you stop peeing for whatever reason, you either have
surgery and/or a catheter to correct it or you will die from infection,when
it backs up into your kidneys. You shouldn’t make statements that you don’t
really mean. The caveman didn’t have a surgeon to go to so he just died.
This is 2005. I have been to over seventy five doctors in my life and I do
not like them, and I agree surgery is a very risky thing with no guarantees,
so I know where you’re coming from, but try to be a little more sympathetic,
and understand that sometimes you either have surgery or die, or suffer from
such unbelievable pain that you wish you were dead. And sometimes,
unfortunately, the surgery makes you worse.
Please don’t write back again blasting me. I do not play the silly back and
forth notes that some people like to do in the group (unless they are
constructive in nature). I hope your prostatitis, or maybe bph, or maybe
both, never get bad enough so you stop urinating, because then you will need
surgery and/or a catheter. Good luck. Pete
Pete 2009-05-15 12:31:57
Bol…I didn’t mean it literally (i.e., that there was a definite connection
or that one leads to the other). Sorry for the misnomer. I just meant that
if you have both (which many people do), it is difficult for a uro to say
which one is more likely to be causing blockage and pain (for instance).
Prostatitis is the big pain guy as far as I am concerned, whereas bph causes
poor flow and retention (but so can prostatitis). One of the many kinds of
pain I get with prostatitis is unbearable and hard to describe. It is kind
of like peeing or e********** and then stopping all of a sudden midway.
That is not it exactly it, but imagine how horrible that would feel. It is
a very gnawing, eating, kind of burning pain (but not true burning like
peeing razor blades of just real bad burning when you pee). It is hard to
describe but it will eat you alive and it is non stop. Do you have a feel
for what I am describing. What’s with this guy named mo and the antacid
c***. I will check out your site. I have been there before. Write back if
Bo l. 2009-05-15 12:32:01
Thanks for the clarification. I’ve never had symptoms like this. Keep in
mind that the symptoms can very widely from person to person. My sympyoms
have been limited to pain at the p**** tip, in the r***** if I sit for long
periods of time, and sometimes ED. My symptoms also wax an wane. Spicey
foods and alcohol tend to cause flair ups.
I suspect “mo” is the latest screen name for a guy formerly known as “Fatty
Mawson”, a troll who has posted his antacid remedies here for years.
It’s the most active forum that I’ve found on the internet for discussing this problem.
Bo l. 2009-05-15 12:32:04
I’ve never seen him, but check out this page for Info
Also, If you have calcification of the prostate, Dr Shoskes in the U.S. is
looking into the effects of tetracycline and a suppliment on patients with
However, I don’t believe he will be back in practive until this summer.
Pete 2009-05-15 12:32:10
Thanks bol…what’s with the “macromedia flash player 7” activeX control
that keeps popping up in the site you recommended. Is it safe to install
and what is its purpose other than to just flash up advertisements if you
install it. I don’t install stuff on my pc unless I am sure it is safe and
it is needed. I notice the site works without it (I would just mute the
aggravating noise that comes with the pop up bar every time you click a new
item to read). Is it needed for certain things, or is it just advertisement
Hi there 2009-05-15 12:32:13
If you don’t have Flash installed as a plug-in, you don’t use the
Internet much. You need to get out more.
Pete 2009-05-15 12:32:16
Okay “Hi there” (I wish you people would give a name)…I have a brand new
pc with xp (sp2) and it is supposed to have the latest “macromedia flash
player” installed. And I use the internet all the time, but not for music or
video c***, and this is the first time I got the pop up message about
installing the flash player. If it is already on my machine can you tell me
how to enable it and why would it be disabled to start with, and will it
open up a window in the xp firewall, etc. I did some searching in help
under plug and play and could not find much. This has nothing to do with
plugging something into a USB port. I don’t understand what is going on
Pete 2009-05-15 12:32:19
Excuse me “Hi there”…After I read your message, I read in some site that
xp had the flash player already installed, but that is not the case, and I
will install it. My humble apologies (i.e. forget the message before this
one). I do remember downloading it on my old millennium. I do a lot of
searching but not much video stuff like I said. Have a nice day…Pete
No 2009-05-15 17:55:15
If you are brave, ask your Doctor about this Diagnostic procedure:
1. After a bowel movement wash the colon several times with
2. Insert 10ml of 50-95% ethanol into the r*****.
(be prepared it will burn like h***)
3. After 3 to 5 minutes expel the alcohol and mucus into a cup.
4. Examine the mucus under a 10-50x stereo microscope for
any particles and red or amber(fibrinogen?) streaks.
5. Isolate and examine anything found at 100-2000x
especially anything amber.
6. Disolve the remaining mucus in 10% NaOH solution.
7. After the mucus has disolved (softly shake for 2-5 minutes?)
neutralize the solution and centrifuge.
8. Remove the liquid, stain the remainder (for fungi) and place
on a slide.
9. Examine at 500-2000x.
Pete 2009-05-15 17:55:26
jrh…How in the world would you ever get a doctor to agree with what you
recommended below. He or she would dismiss you and toss you out on your
ear. My new primary doctor, who I just asked for prednisone (and he
refused – it’s in one of my posts above) immediately sent me a certified
letter saying he was dropping me and didn’t even give me a reason why (my
heart fell to my feet, since I am already totally distraught with my current
prostatitis problem). I immediately called his office, and after insisting
to talk to him (it is very rare if you can get a doctor to talk to you on
the phone anymore), he got on the phone and told me he dropped me because he
thought I was trying to force him to give me the prednisone against his
training. I humbly apologized and begged for his forgiveness (because I
really did like him) and he agreed that it is was a misunderstanding and
said he would forget the certified letter and keep me as a patient. I have
to have a primary (in case I get bronchitis, etc), and I just lost my other
one since he left his practice, and I can’t take any more doctors right now.
I thought this new primary doctor (only been to him 3 times – foreign decent
but spoke good English, and very friendly) was the nicest doctor I have ever
been to and I told him that during our first meeting. I have been to over 75
doctors in my life and most of them are prima donnas, who won’t call you by
your first name and you are just a chart to them, and who don’t respect your
right to study or research your disease, and they will dismiss you quickly
if you are not careful how you word things to them, especially anything that
may imply you know more than they do). This new doctor was not like that –
he called me Peter when he came in the room and we had a very relaxed talk
and he said the patient always comes first when I told him you have to be
able to communicate with your doctor, and he said the patient has every
right to study their disease or condition. So I really liked this guy and I
felt I lucked out. So you can imagine how I felt when I got the certified
letter, especially after having the worst time of my life with this
prostatitis problem. Anyway I salvaged it, which means he must be a pretty
good guy (most doctors would never reverse their decision if they dropped
you, and most people would not want to go back anyway – but that is not the
case here). I have been dropped by doctors, and dropped other doctors on my
own in the past due to personality conflicts. The b**** is they all band
together in one group (5 or 6 doctors), so when when you lose one you lose
them all, and then you may have to go to the nearest city for another one
(especially for the specialists).
My point in writing that long explanation is that there is no way any doctor
in the world would let you come into his/her office and give him/her the
diagnostic procedure you recommended below. First of all they wouldnt do it
themselves- it would have to be done in a hospital/lab environment probably
by some technician, and the doctor would have to spell it out what to do.
How the h*** did you have this done and what particular type of bacteria or
fungus or whatever were you looking for and what did they find.
No 2009-05-15 17:55:33
In article <_jQie.firstname.lastname@example.org>,
Looking for something established medicine has not yet discovered.
“They” did not find anything, because “they” did not look.
If one had an anorectal problem like a fistula, impacted or ruptured
a*** gland, or a fungal abscess, it would seem logical to expect to
see some evidence of it in anorectal secretions.
Fungi are present in the intestiona tract, and they are necessary for
digestion. A search of the internet will find little information
on the subject. So even if the test were done and fungi was found,
how would the lab know if it was abnormal? Red or amber would
be blood or clotting factor and I believe would indicate a problem.
The current diagnostic procedure for this type of problem from
eMedicine World Medical Library
Last Updated: January 3, 2003
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Synonyms and related keywords: a*** abscess, perianal abscess, anorectal
abscess, ischiorectal abscess, perianal fistula, digital rectal examination,
AUTHOR INFORMATION Section 1 of 11 Click here to go to the
next section in this topic
Author Information Introduction Indications Relevant Anatomy And
Contraindications Workup Treatment Complications Outcome And Prognosis Future
And Controversies Pictures Bibliography
Author: Andre Hebra, MD, Clinical Associate Professor of Surgery, Department
of Surgery, University of South Florida, All Children’s Hospital
Coauthor(s): Patrick B Thomas, MD, Staff Physician, Department of Surgery,
Medical University of South Carolina; Michael DeWolfe, BS, BA, Medical
University of South Carolina
Andre Hebra, MD, is a member of the following medical societies: Alpha Omega
Alpha, American Academy of Pediatrics, American College of Surgeons, American
Medical Association, American Pediatric Surgical Association, Association for
Academic Surgery, Society of Laparoendoscopic Surgeons, South Carolina Medical
Association, Southeastern Surgical Congress, and Southern Medical Association
Editor(s): Marc D Basson, MD, PhD, Chief of Surgery, John D Dingell VA Medical
Center, Professor of Surgery, Department of Surgery, Wayne State University
School of Medicine; Francisco Talavera, PharmD, PhD, Senior Pharmacy Editor,
Pharmacy, eMedicine; Amy L Friedman, MD, Chief of Liver Transplantation
Services, Assistant Professor, Department of Surgery, Division of Organ
Transplantation and Immunology, Yale-New Haven Hospital, Yale University
School of Medicine; Paolo Zamboni, MD, Chair of Surgical Methodology,
Assistant Professor, Department of Surgical, Anesthesiological, and
Radiological Sciences, University of Ferrara Medical Center, Ferrara, Italy;
and John Geibel, MD, DSc, Director, Professor, Department of Surgery and
Cellular Molecular Physiology, Yale-New Haven Hospital, Yale University School
INTRODUCTION Section 2 of 11 Click here to go to the previous
section in this topic Click here to go to the top of this page Click here to
go to the next section in this topic
Author Information Introduction Indications Relevant Anatomy And
Contraindications Workup Treatment Complications Outcome And Prognosis Future
And Controversies Pictures Bibliography
Perianal abscess represents an infection of the soft tissues surrounding the
a*** canal, with formation of a discrete abscess cavity. The severity and
depth of the abscess are quite variable, and the abscess cavity frequently is
associated with formation of a fistulous tract. For that reason, both perianal
abscess and perianal fistula are discussed in this article.
Problem: Anorectal abscesses originate from infection arising in the
cryptoglandular epithelium lining the a*** canal. The internal a*** sphincter
is believed to serve normally as a barrier to infection passing from the gut
lumen to the deep perirectal tissues. This barrier can be breached through the
crypts of Morgagni, which can penetrate through the internal sphincter into
the intersphincteric space. Once infection gains access to the
intersphincteric space, it has easy access to the adjacent perirectal spaces.
Extension of the infection can involve the intersphincteric space,
ischiorectal space, or even the supralevator space. In some instances, the
abscess remains contained within the intersphincteric space. The variety of
anatomic sequelae of the primary infection is translated into variable
Frequency: The peak incidence of anorectal abscesses is in the third to fourth
decades of life. Men are affected more frequently than women, with a
male-to-female predominance of 2:1 to 3:1. Approximately 30% of patients with
anorectal abscesses report a previous history of similar abscesses that either
resolved spontaneously or required surgical intervention. A higher incidence
of abscess formation appears to correspond with the spring and summer seasons.
While demographics point to a clear disparity in the occurrence of a***
abscesses with respect to age and s**, no obvious pattern exists among various
countries or regions of the world. Although suggested, a direct relationship
between bowel habits, frequent diarrhea, and poor personal hygiene and the
formation of anorectal abscesses remains unproved.
The occurrence of perianal abscesses in infants also is quite common. The
exact mechanism is poorly understood but does not appear to be related to
constipation. Fortunately, in infants this condition is quite benign and
rarely requires any operative intervention other than simple drainage.
Etiology: Perirectal abscesses and fistulas represent anorectal disorders
arising predominately from the obstruction of a*** crypts. Infection of the
now static glandular secretions results in suppuration and abscess formation
within the a*** gland. The abscess typically forms initially within the
intersphincteric space and then spreads along adjacent potential spaces.
Pathophysiology: Perirectal abscesses and fistulas represent anorectal
disorders that arise predominately from the obstruction of a*** crypts. Normal
anatomy demonstrates anywhere from 4-10 a*** glands drained by respective
crypts at the level of the dentate line. A*** glands normally function to
lubricate the a*** canal. Obstruction of a*** crypts results in stasis of
glandular secretions and, when subsequently infected, suppuration and abscess
formation within the a*** gland results. The abscess typically forms in the
intersphincteric space and can spread along various potential spaces. Common
organisms implicated in abscess formation include Escherichia coli,
Enterococcus species, and Bacteroides species; however, no specific bacterium
has been identified as a unique cause of abscesses. Less common causes of
anorectal abscess that must be considered in the differential diagnosis
include tuberculosis, cancer, Crohn disease, trauma, leukemia, and lymphoma.
Clinical: The classic locations of anorectal abscesses listed in order of
decreasing frequency are as follows: perianal 60%, ischiorectal 20%,
intersphincteric 5%, supralevator 4%, and submucosal 1% (see Image 1).
Clinical presentation correlates with the anatomical location of the abscess.
Patients with perianal abscesses typically complain of dull perianal
discomfort and pruritus. Their perianal pain often is exacerbated by movement
and increased perineal pressure from sitting or defecation. Physical
examination demonstrates a small, erythematous, well-defined, fluctuant,
subcutaneous mass near the a*** orifice.
Patients with ischiorectal abscesses often present with systemic fevers,
chills, and severe perirectal pain and fullness consistent with the more
advanced nature of this process. External signs are minimal and may include
erythema, induration, or fluctuance. On digital rectal examination (DRE), a
fluctuant indurated mass may be encountered. Optimal physical assessment of an
ischiorectal abscess may require anesthesia to alleviate patient discomfort
that would otherwise limit the extent of the examination.
Patients with intersphincteric abscesses present with rectal pain and exhibit
localized tenderness on DRE. Physical examination may fail to identify an
intersphincteric abscess. Though rare, supralevator abscesses present a
similar diagnostic challenge. As a result, clinical suspicion of an
intersphincteric or supralevator abscess may require confirmation by CT scan,
MRI, or a*** ultrasonography. The latter is limited to confirming the presence
of an intersphincteric abscess.
Pete 2009-05-15 17:55:37
I’m confused…did you have this strange diagnostic procedure done or not,
and if you did what did it show. That’s a straight forward question…Pete
No 2009-05-15 17:55:50
In article <%RTie.email@example.com>,
Discovered by accident, did not have it done.
I was unable to contact a medical facility with any interest in
looking into the idea an anorectal problem could be the cause of
CP-CPPS, although I did finad a Doctors website in China proposing
I found a researcher at the University of Hawai willing to scan the
artifacts with an electron microscope but I was unable to find a clinic
willing to prepare the samples.
I examaned all of the images of fungi I could find on the web looking
for a match, there were a lot of similarities, but nothing identical.
I couldn’t loacat any images of fungi common to the human intestional
tract on the web.
For now, far as this disorder goes, I don’t believe Doctors are
going to be much help. If what I believe is true, CP-CPPS may have
a simple cause, but it cascades into multiple problems that are
difficult to treat.
1. A*** gland/s become impacted with yeast/fungi/bacteria from
excessive sitting and bad diet.
2. Clamydospores migrate from the impacted glands to adjacent tissue
carrying bacteria along with spores.
3. The reproductive tract becomes infected with bacteria and yeast.
4. The immune system responds, and an immune response to sperm is
5. The blood supply in the region becomes restricted by the immune
response or from chemicals emited by yeast/fungi.
6. Sitting stops blood circulation in the affected area, causing
discomfort and pain.
7. Hemorrhoids flare up.
8. Muscles weaken.
good luck jrh