Sinaj101 2015-12-08 17:42:24
In 1990 I was bit by a tick and had a bullseye rash. I went to the doctor the
next day after noticing the bullseye rash. He started me on 100mg of
Doxcycline 3 times a day for 2 weeks. He said that should take care of it if
it was Lyme. He also had a Lyme test run at the time which I know now was too
early for the bacteria to show up. The results were negative of course but not
knowing any better believed the test. My LLMD now says he has never seen a
positive result with that test or any that they have given me here locally.
I slowly started having problems after that (bells palsy, joint problems,
headaches, numbness, aching, etc.) but it took until 1996 to make the
connection. It was my husband that made the connection because of reading Field
and Stream and other hunting magazines that talked about hunters getting Lyme
and how it would go dormant and come back months and sometimes years later.
Well, we found an LLMD in Kansas City, MO since we lived in Oklahoma and a lady
in a support group in Independence, MO that I called told me about him. By the
time I got to see him I was sleeping off and on most of the day and night.
When I was awake I hurt so bad from the aching all over. My sensory nerves
were going numb all over my body. I was losing the ability to even walk. The
depression I was going through was astounding since I knew something really bad
was wrong with me and the doctors around here were diagnosing me with things
like MS, fibromyalgia, Lupus and anything but Lyme.
Anyway, once we went to see him and he started me on the same regimen as before
of Doxycycline and after 15 months on it I was 95% over all my symptoms. I
felt so great and went to work after working out and building my body back.
Now I have worked for 3 and a half years and for the last year I have noticed
the numbness in my hands and feet coming back and it was working its way up my
arms and legs. I could barely type or do anything with my hands. Walking was
starting to feel like uncoordinated also. Back I went to Kansas City, MO to my
LLMD. I am now taking 500mg twice a day of Ceftin since June 30th. I am
starting to get the feeling back in my hands and what a relief it is. It is
depressing that I have to stay after this though or it sure enough comes back.
This Ceftin sure must be some kick b*** stuff because its working a lot faster
than the Doxycycline at this point. I am taking my antibiotics and back to
working out and hoping to make the progress I did once before. I still feel
weak but I am working really hard to beat this once again. At this point
things are looking up.
In 3 months my LLMD wants to do a study with me using a Transfer Factor for
Lyme. He thinks if it came back once it could come back again and the next
time I might not be as lucky.
What does everyone think of the Transfer Factors? He said the company he works
with hadn’t done them with Lyme until now. They aren’t ready yet but will be
shortly. They have done the TF’s with virus’s only before and he says they
have done well with them. He said he kept asking for them to do one with Lyme
and they have finally decided to do it.
Anyway, that’s my story in short version. 🙂
Peace 2015-12-08 17:43:00
Great to hear of your remission and sorry about the setback.
Unfortunately, it seems that most people with lyme have to keep vigilant
for relapses especially if there are any big stressors or other
infections to trigger it. The little bit that I know about transfer
factors sounds good. I hope they can use it for Lyme!
I’m on my way to remission myself after over six years of being totally
disabled and bedridden. I was left undiagnosed since 1990, left to rot
basically. I was getting worse and worse until antibiotic treatment.
Intravenous is what did it for me and still is doing it for me. I’ve
been on IV with various orals for 1 1/2 years.
And guess what? My plans, before I became disabled, where to enter a PA
program. Thanks to finally getting diagnosed and treated I will get
there! I’m young too so those stupid old-fart Cro-magnum doctors who
think Lyme is overdiagnosed and overtreated will be dead and gone while
I’m still working to help diagnose Lyme EARLY and help Lyme patients get
Sinaj101 2015-12-08 17:43:03
I realized there was a good possibility that the Lyme could come back but after
the first few years I really had hoped I had it beat. I was in denial for the
last year and looked at everything for an alternative that I had hopes would
get me better. LOL No such luck though.
Sorry to hear about your dealings with Lyme. 🙁 This c*** is no fun and I
want to get back to work so bad but I know right now I don’t have the stamina
Does anyone else with Lyme have the numbness in their hands and feet when the
Lyme attacks? Most that I talk to seem to have other problems. The feeling is
coming back slowly and I am able to type better once again. So I am making
progress I think.
It’s good to hear from you. It’s nice to hear from all the lymies and compare