Stitcher317 2009-01-24 07:07:56
I was diagnosed as hypo in Jan. (TSH 4.89). Not out of range but was
feeling horrible. Dr. started me on 100mcg Synthroid. 6 weeks later
my TSH was 0.062 so she lowered the Synthroid to .88mcg. 6 weeks
later I was at 0.9 so I was lowered this time to .75mcg. That was 4
weeks ago. Most of my hypo symptoms have disappeared but I still get
very tired in the afternoon and I continue to be anxious and
depressed. Now, I have the gnawing hungry feeling most of the time and
also have experienced a spasm type feeling in my esophogus (sp!) I
have been on Prilosec so Dr. doesn’t think I am having a problem with
gastric reflux, etc. My head and ears feel buzzy and I have gotten my
dizziness back. Previously had Vestibular Neuritis (Viral inner ear
infection) but had cleared up. Question… can being on too much
Synthroid cause these feelings? My heart rate is low (55) and blood
pressure runs around 110/65, Also, I am not feeling jittery any any
way…..I have had this tummy problem for about 2 weeks. Getting
worse. Dr. won’t retest my TSH until June 22nd….Anyone have any
experience like this on too much Synthroid?
Theresa hayley 2009-01-24 07:08:11
I was on too much thyroid and what I noticed is that all of the symptoms
were amplified, e.g. more exhausted than ever, more irritable than ever,
more moody, etc. Someone had told me at the forum on thyroid.about.com that
too much could make me feel like that. So I cut back – I had just been to
the doc and she told me to not change my dose. She thought that perhaps my
serotonin was off so she wanted me to take Lexapro. Well, the Lexapro made
me feel worse after just 5 days so I stopped that and then cut back on the
synthroid. I cut back from takine 450 mg Synthroid to what I am taking now
…. .375 mg Synthroid. Within 3 days I was feeling like “normal” (whatever
that is) so I’m sticking to this dose for now.
Herman family 2009-01-24 07:08:34
You are probably right about being on the hyper side. Since you have to
wait only a few more days, stay on this synthroid dose until the test is
taken. If you drop levels now, then you will affect the test numbers, and
fool the doctor into thinking all is well. After the test, ask to drop down
a bit. You might feel a lot better on 50 mcg.
This is likely to be a temporary respite. The thyroid will eventually
weaken and over the next few years your dosage may again rise up to 125 mcg.
Incidentally, starting on 100 mcg for that minor of a thyroid condition
sounds a bit reckless. Usually one starts at 25 mcg and moves up to
titrate. This is the first downward first titration I’ve heard of. It also
has the expected results of sending you hyper.
Steve 2009-01-24 08:58:16
Many of us here experience the same thing: dizziness mediated by
thyroid hormone level. Often this dizziness can be due to vestibular
migraine, which you can google for more info.
Things that have helped me: vitamin D (1000 to 2000 IU per day),
cytomel (about 10 mcg per day), and florinef. You might think about
trying some of those.
Many of us here also get stomach problems from Synthroid. Switching
brands to a generic form, Levoxyl, made a huge difference for me.
Julie e 2009-01-24 08:59:02
I’m not on too much Synthroid, but I have definitely had the spasm feeling
in my throat / esophagus, too. The ENT Dr. wanted to scope me to see if
gastric reflux was causing it. I have doubts that this is the cause, but
what do I know 🙂 I “would” like to know what is causing it.
Stitcher317 2009-01-24 08:59:09
Would you expect it’s possible for the Synthroid to cause stomach
problems 4-5 months after starting Rx? I should have kept a diary from
the beginning of replacement. Interesting you should mention the
“reckless” treatment of starting out with a high dose and going
backward. This was started by my family dr. in Fl. in Jan. New dr.
up north was surprised, too. She said that was the reverse of what
she would do. I questioned the Fl. dr. about her decision at the time
and asked her how she decided on that dose. Her comment was: I just
look at you, your size, and general energy level. She said she
thought I could handle the higher dose because I was small and active!
I am also 62 years old….she suggested that a low starting dose was
appropriate for a large, lethargic person saying the higher dose would
be too much of a “shock” to that type of individual…..All I want now
is to get rid of the buzzing, dizzy feeling…..No on has suggested
vestibular migraine but I do have all the symptoms. ENT ruled out
Meniere’s. I will seek out the google site on this
disorder…..Thanks to everyone for your input. Certainly a bright
group of people..
Theresa hayley 2009-01-24 10:49:03
Oh, please tell me more. What stomach problems do you get out there in
thyroid land? My stomach is always bugging me (gas mainly) and it seems so
much more than people around me. I seem to live on GasX and have to avoid
so many foods which still doesn’t always help.
Bj 2009-01-24 10:49:23
(a) Levoxyl is NOT a generic. It is a brand name, just as Synthroid is.
There are other brand names. There may also be generics, depending on where
you are. And with thyroid meds, it’s not a good idea to change brands
without being retested after a few weeks, to re-check that the dose is
correct — you may need a different dose in a different brand!
(b) some people have adverse reactions (see the full PI, it’s not a secret)
from dyes or fillers in various pills. Try a different dose-strength pill,
or a different brand. Levoxyl is, I believe, lactose free, which may be of
interest to some people. And I think all the brands have one strength pill
that has no dye. You can add & cut & adjust your pill-schedule to make up
the needed average dose.
always bugging me (gas mainly) and it seems so much more than people around
me. I seem to live on GasX and have to avoid so many foods which still doesn’t always help.
brands to a generic form, Levoxyl, made a huge difference for me.
Kevin g. rhoad 2009-01-24 10:49:38
1) lowering dose because TSH is 0.9 could have been a mistake
2) low heart rate and BP of 110/65 are symptoms of being HYPO-,
unless you are a marathoner or other long distance runner in
3) buzzy head and dizziness could be hyper- or hypo-
4) anxious and depressed could be hyper- or hypo-
5) getting very tired in the afternoon is more likey hypo-,
but could be hyper-
6) gastric reflux is common when someone who has been hypo-
starts getting thyroid meds — I think it is because the
production of stomach acid returns to normal (from low)
faster than the esophageal sphincter recovers muscle tone
IF you were ALREADY on prilosec before starting T4, the
prilosec dosage may be inadequate for your present condition
The fact that you having a “gnawing hungry” feeling most
of the time seems to indicate the same thing — too much
stomach acid, prilosec dose is inadequate.
Overall, I really doubt you could be medicated to hyper-
when your heart rate is 55 and your BP is 110/65. I suspect
the last dose adjustment, from 88 to 75 micrograms was
a mistake. Ask for a full thyroid panel, with tests of T3
and T4 serum levels, not just TSH. I suspect that it will
come back with T3 either out of range low or in the lowest part
of the normal range. The T4 level will help diagnosis. If you
are overmedicated, T4 will be out of range on the high side and
T3 will be up there also. More likely, serum levels of T3 adn T4
will indicate UNDERdosing.
TSH is useful as a screening test, but it has never been proven
to be useful as a dose monitoring test. That is based on several
unproven assumptions. All available evidence shows that monitoring
dose solely by TSH level tends to lead to a large portion of patients
Disclaimer: my doctorate is in engineering, not medicine.
Skipperbeers 2009-01-24 10:49:51
Richard Alford postulated those effects were caused by the athlete making
himself hypothyroid, and that kind of running doesn’t really create good
There’s also a problem here in that in part because of the low acid level (Or
the lack of “intrinsic factor” which may be different, I really don’t
understand) we have problems absorbing B-12. Low B-12 causes fatigue, and
nerve problems, and could probably make someone feel dizzy because of those
My wife was one of those people who took B-12 shots before thyroid diagnosis
becuase it made her feel a lot better.
Anyway, Prilosec will block B-12 absorption, so in order to overcome problems
caused by low B-12 if you are on Prilosec, shots for a while may be a good
idea, and you may feel a lot better after.
Steve 2009-01-24 10:49:55
Absolutely. Mine did not start until about 2 months had elapsed. And
it persisted until I switched brands. Never had a similar stomach
reaction to any other rx meds, and over the years I’ve tried many.
Steve 2009-01-24 10:49:58
The Synthroid-stomach problems I got were pain that was dx as an
ulcer. I saw several doctors about it, and the endo, and none had a
clue that Synthroid was the cause. It was only after reading here the
similar experiences of others that I switched brands and began to feel
Herman family 2009-01-24 10:50:07
A tsh of 0.9 is fine. Mine is about 0.8 right now. The dosage differences
aren’t small enough to allow dropping the dose because you are 0.01 off of
I agree that tsh should be corroborated with the other tests. It’s a pretty
good indicator for dosing if everything else is ok. It’s of no or negative
value in certain circumstances.
Herman family 2009-01-24 12:34:13
What kind of heart attack killed Jim Fixx? If it was an electrical
malfunction or a viral infection, then no amount of exercise was going to
help him. If it was based on a vein blockage, then you might have
something. If it was due to muscle breakdown (common in very long races),
then that is another thing altogether.
I reasonably doubt that long distance runners become hypo due to running.
I’ve known several runners, and they are anything but hypo.
Theresa hayley 2009-01-24 12:34:21
Lactose free? I didn’t realize that was an issue with the medication. I am
lactose intolerant. Does Synthroid interfere with that? I have never heard
of that kind of interference with that particular med.
Herman family 2009-01-24 12:34:25
Lactose may be one of the binders in synthroid. Unless you are very
severely lactose intolerant, I wouldn’t expect it to be a problem.
Skipperbeers 2009-01-24 12:34:31
Fixx was visiting Greensboro, Vermont when he walked out of his house and began
jogging. He’d only gone a short distance when he had a massive coronary. His
autopsy revealed that one of his coronary arteries was 99% clogged, another was
80% obstructed, and a third was 70% blocked….and that Fixx had three other
attacks in the weeks prior to his death.
Hyperthyroid runners have blood vessels as clean as a whistle on autopsy they
say. It would seem that Jim Fixx’s was more on the hypo side for the state of
the blood vessels from that paragraph.
Emaciated is how my 10 year old son looked before being diagnosed as
hypothyroid. In his book, Dr. Derry mentioned anorexia as one of the symptoms
of hypo, and some of us look emaciated like my son did, and as some runners do.
Let me see, emaciation, bradycardia (slow pulse rate, I know you’re aware of
the meaning, not eveyone is), low blood presure these are quite common in low
thyroid. Of course, there was the teacher’s request to put my “hyperactive”
son back on Ritalin, which we refused to do.
So, to some degree exercise may actually increase one’s hypothyroidism.
I don’t know for sure.
In my younger days, I loved to run. But, it didn’t increase my energy level,
just made me tired. And eventually, each time regardless of how slowly I tried
to get in shape, I would develop leg injuries that would be fine as long as I
stopped running, but if I kept it up even at much reduced mileage, it would
Herman family 2009-01-24 12:34:35
I would think that the hyperactivity would be caused by your son not being
able to concentrate on anything in particular for any length of time, which
could be caused by thyroid or any number of other problems. Ritalin is way
over prescribed. They ought to get to the bottom of the issues rather than
masking them with Ritalin. Too many kids are hypo or hyper, don’t sleep
right, have poor nutrition, etc.
I also know that when the digestive system shuts down (or slows down),
people just aren’t hungry, so extreme hypos don’t eat much at all.
Those must have been silent heart attacks, or completely ignored by Jim. I
wonder if he was an undiagnosed diabetic. High cholesterol and diabetes run
together, and the nerve damage sometimes leads to silent heart attacks. I’m
not so sure of hypo yet.
Stitcher317 2009-01-24 12:34:41
Thank you, Kevin, Skipper and the Herman Family. You are all being so
helpful and I really appreciate your guidance. Here are the rest of
given to me at my last visit on 5/6/04
I have read a little about Vitimin B-12 in relation to problems with
the vestibular nerve. I am scheduled for a neurological evaluation
but think I really need to see an Endo. I am in an HMO and I CANNOT
direct traffic. It’s so frustrating. She is referring me for Neuro
consult due to hand tremors that started 2-3 years ago. ( This is also
about the time my TSH levels started going up) I also have had a
“frozen shoulder” for the past 6 months and she wants to rule out an
“autoimmune” problem. My anitbiody test was negative. What is your
opinion of the Free t3. t4 numbers? It will be interesting to see
what the numbers are next week.
Again, my thanks to everyone.
Skipperbeers 2009-01-24 12:34:48
My son was hypo from age 7 until 10 because I couldn’t find a reference to that
fact. His difficulty eating and emaciated appearance were quite different from
my symptoms. I always ate a lot of food. I did this in spite of always having
a full or bloated feeling in my stomach. If I waited for it to be empty, like
it can get now, I would have stopped eating like he did. I think keeping up
the food intake keeps the digestive process going and sometimes if you don’t
eat because you don’t feel hungry, you get so constipated the pressure of that
makes you unable to eat any more food.
He was on Ritalin for a short time because we started seeing a psychiatrist
because we were thinking anorexia, more likely a mental problem since the
doctors had no other ideas. First, the psychiatrist put him on Tofranil, which
sometimes increases the appetite. It did help him sleep, which was the one
good thing Tofranil did. It didn’t change his appetite. I don’t recall how he
talked us into giving him Ritalin, since Ritalin decreases appetite I have no
idea why I would have allowed him to take it if I knew. The teacher liked him
We always thought he was a bit hyperactive. Around the time I found a website
by a children’s growth clinic called The Magic Foundation, I forced him to do
his math homework. He did it very, verly s-l-o-w-l-y, and in the middle of it
he fell asleep. Had he done that all along, I would have got his thyroid
treated sooner, but with symptoms unlike mine, and a TSH of 2, I didn’t see the
possibility. I only had the TSH done to rule it out as a problem. I knew TSH
wasn’t that reliable, but I didn’t recognize the symptoms.
When I approached the family doctor of 5 years who had diagnosed my thyroid
condition, she refused to treat him.
Fortunately, Dr. Donald Michael participated in the thyroid Listserv at
www.thyroid.emissary.net\thyroid, and I had been learning a lot from him, and I
knew where he cuuld be treated in spite of normal TSH. He went on Armour,
started eating and growing again.
Teachers have a difficult time these days. (I’m not referring to the pay, where
in Michigan they receive the second highest wages in the nation, have the best
health benefits known, a good retirement plan and long vacations, but to the
working conditions.) Without being able to use helpful things like spanking,
they’ve started passing out candy as incentive or reward, and medication to
change personality is considered more humane than spanking I guess. Some of us
used to like those junior high teachers who carried around big paddles because
it meant the teacher was a lot more likely to have an orderly class.
My wife had a daycare for a couple years. Parents tend to not enforce
bedtimes, and children have TVs in their rooms which they can watch while they
fall asleep. Some of those children act “hyper” and can’t pay attention
because they are fighting sleep. With some, if they sit still for a few
minutes to watch TV or do some other calm activity, they fall soundly asleep,
and it’s almost impossible to wake them up. No wonder they were trouble
It may be why after Barnes’ book in which he said none of his diabetic patients
thought was that hypo was very bad for the heart, and I suspect he was right.
It’s well known to cause high cholesterol, it can cause high blood pressure and
it vasoconstricts blood vessells in order to conserve energy, which tends to
make our hands and feet cold. Dr. Michael, who I referred to earlier is also a
neurologist and he says there is no neurological symptom that hypothyroidism
I don’t know if all diabetic problems are really caused by hypothyroidism. I
do know my former business partner had almost the same exact health problems I
did, all the way to limping from foot neuropathy. All my problems got better
I suspect at the very least, it’s important for a diabetic to make quite sure
their thyroid is adequately treated if they are hypo.
Padmaja_peddi 2009-01-24 12:34:52
I am not a marathon runner but had a BP of 110/65 for a long time
atleast 5 years. I didn’t realize it that it is because of hypo
thyro.. I was recently diagonosed being hypo and am having tough time
dealing with relatively high heart rate and I guess high blood
Never lost hair or felt lethargic until after I started taking
medications. I hope all my problems will be gone when ever I become
Theresa hayley 2009-01-24 19:44:59
My BP now is regularly 110/65. And when my meds get off whack then I start
getting the palpitations but normal for me are those numbers.
What is Euthyroid??
I’m taking 450 mg Synthroid – I’m hoping at some point it levels off!! I’m
past complete replacement!